My PD Story

Everything can change so quickly. Even though I worked in the healthcare industry, finding out my husband Bill had Parkinson’s disease (PD) was still an overwhelming experience. I had to have faith that we could do this. 

The hospital I worked at didn’t have a Parkinson’s program, so I researched movement disorders specialists (neurologists with additional training in Parkinson’s) on my own. The specialist that was recommended to me had a very long wait time for new patients, but I was determined to get my husband in as soon as possible. I called daily to ask about cancellations. My persistence paid off and we got an appointment a month later.  

Bill is a fighter; he started exercising more, going to the gym, doing rock climbing and Rock Steady Boxing. We began engaging with the Parkinson’s community right away.  

We joined a local support group, including one specifically for people with Parkinson’s and caregivers. I volunteered for the Parkinson’s Foundation as an ambassador. We were building ourselves a community that we continue to lean on every day.  

Being the spouse of a person with PD is hard. While you inevitably learn how to navigate this disease, you must also make and take time for yourself. Bill and I went to support groups where the caregivers broke off to meet separately — and this was a gift. It felt great to talk with other spouses who were dealing with the same things as me. Twelve years later, I continue to facilitate monthly meetings with a caregiver’s group locally. 

As Bill’s Parkinson’s symptoms continued to get worse, we started looking at deep brain stimulation (DBS) as an option. One of our friends with similar symptoms had success with the procedure, so we asked Bill’s neurologist if it would be an option for him. I did my research, but ultimately, it was Bill’s decision. I’m glad he had the support he needed to make it.  

"After getting DBS, it felt like we started living again."  

Today, Bill goes out with friends, visits with the grandkids and plays cards at the American Legion twice a week. I’m able to do the things I enjoy as well. We remain active in the Parkinson’s community and joined Abbott’s DBS Patient Ambassador Program. As part of the program, we speak to patients and caregivers about how the procedure has allowed us to move forward.  

We have built a community of family and friends and today, it’s my turn to lean into it. As I deal with my own personal health struggles, I feel comfort in knowing that we have built the support system we need to get through this too. I have faith that we have all the pieces in place to get to the other side of this too. 

It’s times like these that I keep this Beatles song close to my heart. “I get by with a little help from my friends… I’m gonna try with a little help from my friends.” 

Ready to build your Parkinson’s community? Explore our In Your Area feature on our website or call our Helpline at 1-800-4PD-INFO (1-800-473-4636) for your nearest support groups and exercise classes.