My PD Story

I was diagnosed with Parkinson's disease (PD) in August 2017 at the age of 44. The year prior, I started noticing subtle changes in my handwriting and my right leg felt less stable. I was referred to a neurologist. He dismissed my symptoms, attributing them to a pinched nerve or stress. But things continued to worsen. My handwriting was illegible at times, and I felt increasingly stiff and off-balance.  

A year later, my chiropractor recommended I seek a second opinion. This time, two different neurologists reached the same conclusion: I had Parkinson’s. I was filled with anger and disbelief. The fear of how PD would steal my independence was overwhelming. 

For nearly a year, I kept my diagnosis a secret. Only my partner (now my husband) knew. I did not even tell my three children. My daughter was in her senior year of college and wanted to attend graduate school on the West Coast to pursue a master's degree in architecture. I did not want her to feel obligated to stay close to home, so I kept my condition hidden until after her graduation and commitment to graduate school.  

It was difficult to grapple with the reality of PD while maintaining a facade of normalcy. 

After finally opening up about my diagnosis, a friend with PD recommended Rock Steady Boxing. It was a major turning point. The program reshaped my attitude. My new mantra became, "I'm taking command of PD, and not letting it take command of me." This newfound determination inspired me to take a proactive approach to managing my condition. 

Another friend, an occupational therapist, suggested I see a neurologist at the renowned Shirley Ryan Ability Lab in Chicago. It was a game-changer, motivating me to explore every therapy and treatment available: physical therapy, occupational therapy, speech therapy, osteopathic manipulation, massage, chiropractic, dry needling — anything that could help me live a fuller life. I have also participated in research studies, hoping to contribute to a better understanding of PD. 

However, the demands of my job left little time for prioritizing my health. I realized I had to make a change. After a 30-year career centered around government, I decided to put my health first and pursue something more flexible.  

In August 2024, I launched Pat&Lily, an online boutique selling ethically sourced women's clothing and accessories. A portion of our profit is going to my local Rock Steady Boxing affiliate. I hope to make this amazing program more accessible to people in my community and to raise awareness nationwide.  

While PD has presented significant challenges, it has also compelled me to reevaluate my priorities and cherish each day. Kudos to the Parkinson's Foundation for their unwavering support of the PD community. Participating in Moving Day events and accessing their online resources have been helpful in my journey.  

I am grateful to have found strength in a community of people facing similar struggles, and I am determined to keep fighting. Together we can take command of PD until a cure is found. 

Explore Parkinson’s Foundation resources that can help you today.