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Caregiving

Building a Parkinson’s Wellness Program: Step by Step

The Edmond J. Safra National Parkinson’s Wellness Initiative extends Parkinson’s care beyond the walls of the clinic. It uses a unique, medical-community partnership approach – pairing a Jewish Community Center (JCC) with a Parkinson’s Foundation Center of Excellence – to create inclusive, welcoming community hubs for people affected by Parkinson’s around the country. This video highlights how deeply impactful the program is for people with Parkinson’s and their care partners.

Caregiver Corner: Having a Voice When Speaking with Your Loved One’s Physicians

Date: 
Wednesday, April 12, 2017
Author: 
Jane H Davis

My Parkinson’s spouse has many physicians, as PD has taken its toll on so much of his body. I go to most his medical appointments as I am his constant observer, and I am the one fighting for his health. I have decided to write about having a voice when speaking with physicians as I find this extremely important, not only for me to be aware, but most importantly for him to get the best care as possible.

Caregiver Corner: Thoughts on Parkinson’s by Maggy Hurchalla

Date: 
Monday, November 21, 2016
Author: 
Maggy Hurchalla

My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.

It takes a village.

Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.

NPF Caregiver Summit 2016: Tools For Family Caregivers: Caremap and Caring & Coping

There is no one-size-fits-all approach to taking care of someone with Parkinson’s; it is a journey. NPF’s CareMAP, www.caremap.parkinson.org, includes 40 how-to videos and caregiver stories to provide both practical and personal tips for coping with the complex problems that arise as a result of PD. The complementary workbook, Caring and Coping, will help prepare you for every step of the journey.

Caregiver Corner: Top Parkinson's Foundation Resources for Caregivers

Date: 
Tuesday, November 8, 2016
Author: 
Vaughn Edelson

In all our programs, the Parkinson's Foundation aims to make life better for people affected by Parkinson’s disease (PD). Parkinson's not only affects the person who receives the diagnosis — it extends to that person’s family, friends and community. While we pride ourselves on the high quality information and resources we provide for people with Parkinson’s, we also recognize that caregivers need support.

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