The Edmond J. Safra National Parkinson’s Wellness Initiative extends Parkinson’s care beyond the walls of the clinic. It uses a unique, medical-community partnership approach – pairing a Jewish Community Center (JCC) with a Parkinson’s Foundation Center of Excellence – to create inclusive, welcoming community hubs for people affected by Parkinson’s around the country. This video highlights how deeply impactful the program is for people with Parkinson’s and their care partners.
My Parkinson’s spouse has many physicians, as PD has taken its toll on so much of his body. I go to most his medical appointments as I am his constant observer, and I am the one fighting for his health. I have decided to write about having a voice when speaking with physicians as I find this extremely important, not only for me to be aware, but most importantly for him to get the best care as possible.
This quick starter guide for families and caregivers is from Honor. Every person with Parkinson’s disease (PD) is unique — and so is every caregiver. With the right preparation, planning and support, you can do this!
My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.
It takes a village.
Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.
There is no one-size-fits-all approach to taking care of someone with Parkinson’s; it is a journey. NPF’s CareMAP, www.caremap.parkinson.org, includes 40 how-to videos and caregiver stories to provide both practical and personal tips for coping with the complex problems that arise as a result of PD. The complementary workbook, Caring and Coping, will help prepare you for every step of the journey.
In all our programs, the Parkinson's Foundation aims to make life better for people affected by Parkinson’s disease (PD). Parkinson's not only affects the person who receives the diagnosis — it extends to that person’s family, friends and community. While we pride ourselves on the high quality information and resources we provide for people with Parkinson’s, we also recognize that caregivers need support.
As a caregiver, what areas of your life can you improve? Take this quiz to narrow it down. Monitor how your risk factors change over time by taking this quiz every few months. Share your results with family and friends so they can better understand the scope of caregiving.