Judy and Phil Bellenfant were energized to be in Washington, D.C. in March for the 2018 Parkinson’s Policy Forum and to meet with Representative Chuck Fleischmann (R-TN) in his Capitol Hill office.
And then, it snowed. It snowed so much that the federal government closed for the day and Judy and Phil couldn’t make it to the Hill. But there was no stopping the Bellenfants from making their voices heard.
At the Parkinson’s Foundation, one of our goals is to raise Parkinson’s awareness and how the Foundation supports those living with the disease, as well as their loved ones. If you are familiar with Parkinson’s you probably know most of the items on this list, but we encourage you to share this article with someone who may not be familiar.
1. The cause is unknown and there is no cure.
Last week, the Parkinson’s Foundation and The Michael J. Fox Foundation presented the 2018 Parkinson’s Advocacy Awards to six individuals. The awards shine a spotlight on efforts to further policies that benefit people with Parkinson's, their families and care partners. During the ceremony, which took place at the Parkinson's Policy Forum, advocates, scientists and a lawmaker were recognized for their service to the Parkinson's community.
While the Parkinson’s Foundation is here for you year-round, every April we find new ways to engage our Parkinson’s community near and far to help us raise awareness during Parkinson’s Awareness Month.
Last week, 300 Parkinson’s disease (PD) advocates from nearly all 50 states convened in Washington, D.C. for the 2018 Parkinson’s Policy Forum. This annual event brings people with PD and their loved ones to our nation’s capital for two days of education and training followed by a day of advocacy action and engagement. Despite a snowstorm that closed Congress’ doors and shut down the streets of Washington, advocates made sure the Parkinson’s community was heard on Capitol Hill.
Yesterday, Senator Cory Booker (D-NJ) joined nearly 300 people with Parkinson’s disease (PD), their families and other community members in Washington, D.C. to deliver a keynote address at the 2018 Parkinson’s Policy Forum. Parkinson’s is an important issue for the senator, whose late father lived with the disease for many years. During his speech, Sen. Booker discussed his family’s experience with PD, the need for robust Parkinson’ research funding and the importance of speaking up for what is right.
In this blog, Angie Hott discusses her work as a Parkinson’s advocate and her participation in the upcoming 2018 Parkinson’s Policy Forum, co-sponsored this year by the Parkinson’s Foundation and The Michael J. Fox Foundation. The event will take place March 19 to 21 in Washington, D.C. You can view a live stream of the Forum’s educational panels on March 19 and 20 by visiting the Parkinson's Foundation's Facebook page.
March 12-18 is Brain Awareness Week. This year, the Parkinson’s Foundation, in collaboration with the Brain Donor Project, is working to shed light on the critical need for brain donation to advance Parkinson’s disease (PD) research.