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Raise Awareness

From Washington, D.C. to Tennessee, Advocates Speak Up for the PD Community

Date: 
Monday, April 30, 2018

Judy and Phil Bellenfant were energized to be in Washington, D.C. in March for the 2018 Parkinson’s Policy Forum and to meet with Representative Chuck Fleischmann (R-TN) in his Capitol Hill office. 

And then, it snowed. It snowed so much that the federal government closed for the day and Judy and Phil couldn’t make it to the Hill. But there was no stopping the Bellenfants from making their voices heard.

10 Interesting Facts About Parkinson’s

Date: 
Friday, April 6, 2018
Author: 
Parkinson's Foundation

At the Parkinson’s Foundation, one of our goals is to raise Parkinson’s awareness and how the Foundation supports those living with the disease, as well as their loved ones. If you are familiar with Parkinson’s you probably know most of the items on this list, but we encourage you to share this article with someone who may not be familiar.

1. The cause is unknown and there is no cure.

2018 Parkinson’s Advocacy Awards Presented to Community Leaders

Date: 
Friday, March 30, 2018
Author: 
Parkinson's Foundation

Last week, the Parkinson’s Foundation and The Michael J. Fox Foundation presented the 2018 Parkinson’s Advocacy Awards to six individuals. The awards shine a spotlight on efforts to further policies that benefit people with Parkinson's, their families and care partners. During the ceremony, which took place at the Parkinson's Policy Forum, advocates, scientists and a lawmaker were recognized for their service to the Parkinson's community.

Snow Doesn’t Stop Advocates from Making an Impact in Washington

Date: 
Monday, March 26, 2018
Author: 
Parkinson's Foundation

Last week, 300 Parkinson’s disease (PD) advocates from nearly all 50 states convened in Washington, D.C. for the 2018 Parkinson’s Policy Forum. This annual event brings people with PD and their loved ones to our nation’s capital for two days of education and training followed by a day of advocacy action and engagement. Despite a snowstorm that closed Congress’ doors and shut down the streets of Washington, advocates made sure the Parkinson’s community was heard on Capitol Hill.

Senator Cory Booker (D-NJ) Tells PD Advocates: “What You Do Matters”

Date: 
Wednesday, March 21, 2018
Author: 
Parkinson's Foundation

Yesterday, Senator Cory Booker (D-NJ) joined nearly 300 people with Parkinson’s disease (PD), their families and other community members in Washington, D.C. to deliver a keynote address at the 2018 Parkinson’s Policy Forum. Parkinson’s is an important issue for the senator, whose late father lived with the disease for many years. During his speech, Sen. Booker discussed his family’s experience with PD, the need for robust Parkinson’ research funding and the importance of speaking up for what is right.

Advocacy Is All in the Family for the Hotts

Date: 
Monday, March 12, 2018
Author: 
Angie Hott

In this blog, Angie Hott discusses her work as a Parkinson’s advocate and her participation in the upcoming 2018 Parkinson’s Policy Forum, co-sponsored this year by the Parkinson’s Foundation and The Michael J. Fox Foundation. The event will take place March 19 to 21 in Washington, D.C. You can view a live stream of the Forum’s educational panels on March 19 and 20 by visiting the Parkinson's Foundation's Facebook page.

Save the Date: Parkinson’s Advocacy Day

Date: 
Thursday, March 1, 2018

As people with Parkinson's and their loved ones know, you can, and often must, be your own best advocates. No one understands the ins and outs of Parkinson's better than those who are touched by the disease. On Wednesday, March 21, join members of our community for Parkinson’s Advocacy Day and tell your lawmakers what matters to you. By sharing your needs and priorities with elected officials on this day of action, you can play a critical role in shaping their decision-making.

Government Spending Bill Eliminates Medicare Therapy Cap, Increases Access to Care

Date: 
Thursday, February 15, 2018
Author: 
Parkinson's Foundation

Since 2011, the Parkinson’s Foundation has worked with the Parkinson’s community to address Medicare challenges related to services such as physical therapy, occupational therapy and speech-language therapy. In 2014, we advocated to remove the Improvement Standard, meaning that people with Parkinson’s could no longer be denied coverage for therapy solely for lack of improvement. Now, the Parkinson’s community can celebrate the next milestone in access to care for Medicare recipients.

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