In this blog, Angie Hott discusses her work as a Parkinson’s advocate and her participation in the upcoming 2018 Parkinson’s Policy Forum, co-sponsored this year by the Parkinson’s Foundation and The Michael J. Fox Foundation. The event will take place March 19 to 21 in Washington, D.C. You can view a live stream of the Forum’s educational panels on March 19 and 20 by visiting the Parkinson's Foundation's Facebook page.
March 12-18 is Brain Awareness Week. This year, the Parkinson’s Foundation, in collaboration with the Brain Donor Project, is working to shed light on the critical need for brain donation to advance Parkinson’s disease (PD) research.
As people with Parkinson's and their loved ones know, you can, and often must, be your own best advocates. No one understands the ins and outs of Parkinson's better than those who are touched by the disease. On Wednesday, March 21, join members of our community for Parkinson’s Advocacy Day and tell your lawmakers what matters to you. By sharing your needs and priorities with elected officials on this day of action, you can play a critical role in shaping their decision-making.
Since 2011, the Parkinson’s Foundation has worked with the Parkinson’s community to address Medicare challenges related to services such as physical therapy, occupational therapy and speech-language therapy. In 2014, we advocated to remove the Improvement Standard, meaning that people with Parkinson’s could no longer be denied coverage for therapy solely for lack of improvement. Now, the Parkinson’s community can celebrate the next milestone in access to care for Medicare recipients.