Videos & Webinars

What are the different forms and stages of Parkinson's disease?

Parkinson’s disease (PD) impacts people in different ways. Not everyone will experience all the symptoms of Parkinson’s, and if they do, they won’t necessarily experience them in quite the same order or at the same intensity. There are typical patterns of progression in Parkinson’s disease that are defined in stages. Joseph Jankovic, MD discusses those patterns in terms of the forms and stags of Parkinson's disease.

Podcasts

Episodio 5: ¿Porque son importantes las pruebas genéticas?

Para entender el rol que juega la genética en la enfermedad de Parkinson, primero hay que entender de que consiste la genética y como la comunidad hispana puede participar en el avance de la investigación a través de las pruebas genéticas.

En este episodio, hablamos con el doctor Ignacio Mata, doctor en neurogenética e investigador principal en el departamento de genómica medica en la Cleveland Clinic sobre la significancia de las pruebas genéticas y de las iniciativas PDGENEration y el Parkinson’s Outcomes Project de la Parkinson’s Foundation.

Este episodio es el segundo en una serie de cuatro episodios con el doctor Mata, en las que cubrimos los temas de la genética, la importancia de las pruebas genéticas y la representación hispana en la comunidad de Parkinson.

Lanzado: 28 de abril de 2020

Podcasts

Episode 30: Team Care for PD: Why It’s Important

Parkinson’s disease is a complex condition, involving more than just movement. And to ensure the best outcomes and quality of life, people with PD should have a coordinated team of health professionals to help with their physical, social, and emotional needs. Since PD is a progressive disease, this array of health professionals can keep a constant eye on the changing condition and provide appropriate therapies as needs arise. Today, Lisa Mann, the nurse and education director for the Oregon Health and Science University Parkinson’s Center in Portland, a Parkinson’s Foundation Center of Excellence, discusses who should be part of the core team and how other rehab therapists and health care professionals can be brought onto the team as needed.

Released: June 5, 2018

Podcasts

Episodio 4: Cubriendo la genética con el Dr. Mata: Su trabajo en la genética y su colaboración con la Parkinson’s Foundation

Para entender el rol que juega la genética en la enfermedad de Parkinson, primero hay que entender de que consiste la genética y como la comunidad hispana puede participar en el avance de la investigación a través de las pruebas genéticas.

En este episodio, hablamos con el doctor Ignacio Mata, doctor en neurogenética e investigador principal en el departamento de genómica medica en la Cleveland Clinic. Este episodio es el primero en una serie de cuatro episodios con el doctor Mata, en las que cubrimos los temas de la genética, la importancia de las pruebas genéticas y la representación hispana en la comunidad de Parkinson.

Lanzado: 31 de marzo de 2020

Podcasts

Episode 128: Medicare and Parkinson’s Disease

Medicare, the U.S. government health insurance program, covers more than 63 million people, with more than 49 million people also receiving prescription drug coverage. It provides health insurance for adults over 65 as well as people with some medical conditions or disabilities. The system has many moving parts, and beneficiaries need to understand it to derive the most benefit, know what it covers and does not cover, and what costs they will be responsible for. An important time is the initial enrollment period, when people need to decide what kind of plan they want to select, either “original” Medicare through the government or a Medicare Advantage plan with a private insurer. Receiving prescription drug coverage is another decision, one that is particularly important to someone with Parkinson’s disease.

Fortunately, there are several resources to help people sort out all the options, and once enrolled, the year-to-year coverage decisions are much less burdensome. In this episode, Jane Sung, JD, a senior strategic policy advisor at the AARP Public Policy Institute, explains some of the intricacies of the Medicare system and helps to sort out the kinds of decisions people need to make about Medicare coverage.

Released: May 3, 2022

Podcasts

Episode 127: Aging in Place

As many people get older, they start to think about where they want to reside for the rest of their years. For many of them, that place is the home they are already in. But it is not as simple as just staying put. One must consider mobility issues, staying safe physically, nearby services, social support, transportation issues, along with present and future medical needs.

These are issues common to most people as they age, and Parkinson’s disease adds another level of considerations. Fortunately, many resources are available to help in planning for the future. In general, the topic goes under the term “Aging in Place,” which the U.S. Centers for Disease Control and Prevention defines as “the ability to live in one's own home and community safely, independently, and comfortably, regardless of age, income, or ability level.

In this episode, Rodney Harrell, Vice President for Family, Home, and Community at the AARP Public Policy Institute describes what Aging in Place should mean, misconceptions about it, barriers to it, what to consider, and how best to prepare for Aging in Place. Then Scott Rider, a Parkinson’s Foundation Aware in Care Ambassador, National Development Committee Member and Carolinas Chapter Advisory Board Member, discusses how he has put an Aging in Place plan into practice by adapting his home for his current needs and anticipated future needs considering, specifically, his Parkinson’s disease.

Released: April 19, 2022

Podcasts

Episode 125: Young-Onset Parkinson’s Disease: Lifestyle, Family, and Counseling

Parkinson’s disease (PD) does not exclusively affect the older population. In fact, about four percent of people with PD in the United States developed the disease before age 50. This is called Young-Onset Parkinson’s disease (YOPD). While the disease in younger people resembles in many ways PD in the older age group, it presents some unique challenges, including issues with employment, sexuality, pregnancy, family life, financial planning and parenting. In this episode, the second of two on YOPD, Dr. Bart Post of Radboud University in Nijmegen, the Netherlands, a Parkinson’s Foundation Center of Excellence, focuses on some of the social and interpersonal issues, including work, family, and women’s issues. He also describes the Phase of Life Dependent Support Program that he has developed at his university to meet the special needs of people with YOPD.

Released: March 22, 2022

Podcasts

Episode 123: Managing Stress with a Mindful Approach

Stress is almost a constant in our lives and especially when coping with changing symptoms of Parkinson’s disease. Adding to the usual stresses are the pandemic with its social isolation and uncertainty of when it will be over, as well as the flood of local and international news. So we all deserve some time to focus on ourselves, and one useful technique is mindfulness meditation, in which a person focuses on being intensely aware of what they are sensing and feeling in that moment. This focus helps give insight into those senses and feelings without interpreting them or judging them. Various techniques can facilitate this practice to reduce stress, including breathing methods and guided imagery. In this episode, Crista Ellis, Community Program Manager with the Parkinson’s Foundation and a certified yoga and meditation educator, describes what mindfulness meditation is, how people can begin the practice, including the Foundation’s Mindfulness Mondays sessions, and what it can do for them.

Released: February 22, 2022

Podcasts

Episode 122: Environmental Factors and Parkinson’s Disease

The cause of most cases of Parkinson’s disease (PD) is unknown. Researchers have found genes or genetic variants that are associated with risk for the development of PD, but genetic causes are thought to play a role in only a minority of cases. However, accumulating evidence from epidemiologic studies, laboratory basic research, and animal models indicates that exposure to environmental toxins can increase risk of the disease. These substances include pesticides, solvents, metals, and other environmental pollutants. In this episode, Samuel Goldman, MD, MPH, Professor of Occupational and Environmental Medicine and Neurology at the University of California, San Francisco, a Parkinson’s Foundation Center of Excellence, reviews what has been learned so far and explains some of the complexities of doing research on environmental causes of PD.

Released: February 8, 2022

Podcasts

Episode 12: What We’ve Learned from the Hispanic Parkinson’s Community

When you have a chronic, progressive condition like Parkinson’s disease, there is always something new to learn. But access to information and resources about Parkinson’s varies for individuals and communities. Dr. Claudia Martinez, the Hispanic outreach coordinator at the Muhammad Ali Parkinson Center at the Barrow Neurological Institute in Phoenix, Arizona, a Parkinson’s Foundation Center of Excellence, describes the methods she uses to help Hispanic people with Parkinson’s get the best possible care. She also talks about Parkinson’s programs that are available to Spanish speakers in Phoenix, across the United States, and around the world.

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