This quick starter guide for families and caregivers is from Honor. Every person with Parkinson’s disease (PD) is unique — and so is every caregiver. With the right preparation, planning and support, you can do this!
My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.
It takes a village.
Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.
Whether you have two minutes or 20, mindfulness meditation can help you reduce your stress and pain, make stronger connections, improve focus, and feel better overall. In this video, Paula Wiener, MSW, LCSW, leads you through a brief session of deep breathing and guided imagery, giving you the tools to incorporate this practice into your daily life as both a coping and prevention strategy.
You will experience a range of emotions over the course of your loved one’s Parkinson’s journey. As the disease progresses and your role as caregiver evolves, you will revisit many of the emotions as you come to terms with the disease again and again. Jan Seale spoke from personal experience about caring for yourself mentally and emotionally, the importance of being honest with yourself about what you feel, and the need to have an outlet for your emotions.
In all our programs, the Parkinson's Foundation aims to make life better for people affected by Parkinson’s disease (PD). Parkinson's not only affects the person who receives the diagnosis — it extends to that person’s family, friends and community. While we pride ourselves on the high quality information and resources we provide for people with Parkinson’s, we also recognize that caregivers need support.
As a caregiver, what areas of your life can you improve? Take this quiz to narrow it down. Monitor how your risk factors change over time by taking this quiz every few months. Share your results with family and friends so they can better understand the scope of caregiving.
Let CareMAP be your guide to coping with the complex problems that arise as a result of advanced PD. How-to videos and caregiver stories provide both practical and personal tips on the following topics:
Summer is the time for long drives, late sunsets and the outdoors. However, direct and prolonged exposure to the summer sun can also result in sunburns and over time, skin cancer. Skin cancer is the most common cancer in the U.S. and it is even more of a threat for people with Parkinson’s disease (PD) because they have a higher risk of developing malignant melanoma. Skin cancer is preventable. Taking proper precautions and knowing what to look for can save your life.
Many families and caregivers seek the answer to the question, “What should I do with Dad? He just wants to sit and watch TV all day.”
Communication is a vital way we connect, build and maintain relationships. It is scary when your loved one begins to have communication issues due to Parkinson’s disease (PD) that may threaten your bond. The good thing is it doesn’t have to be that way.
Reviewing some cognitive and communication changes that someone with PD may experience as the disease progresses, your loved one might: