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Caregiver Tips

Caregiver Corner: Thoughts on Parkinson’s by Maggy Hurchalla

Monday, November 21, 2016
Maggy Hurchalla

My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.

It takes a village.

Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.

Caregiver Summit 2016: Coping Strategy: Mindfulness

Whether you have two minutes or 20, mindfulness meditation can help you reduce your stress and pain, make stronger connections, improve focus, and feel better overall. In this video, Paula Wiener, MSW, LCSW, leads you through a brief session of deep breathing and guided imagery, giving you the tools to incorporate this practice into your daily life as both a coping and prevention strategy.

Caregiver Summit 2016: Caregiving: The Emotional Rollercoaster

You will experience a range of emotions over the course of your loved one’s Parkinson’s journey. As the disease progresses and your role as caregiver evolves, you will revisit many of the emotions as you come to terms with the disease again and again. Jan Seale spoke from personal experience about caring for yourself mentally and emotionally, the importance of being honest with yourself about what you feel, and the need to have an outlet for your emotions.

Caregiver Corner: Top Parkinson's Foundation Resources for Caregivers

Tuesday, November 8, 2016
Vaughn Edelson

In all our programs, the Parkinson's Foundation aims to make life better for people affected by Parkinson’s disease (PD). Parkinson's not only affects the person who receives the diagnosis — it extends to that person’s family, friends and community. While we pride ourselves on the high quality information and resources we provide for people with Parkinson’s, we also recognize that caregivers need support.

Tips for Daily Living: Protect Yourself From Skin Cancer

Monday, June 20, 2016
Parkinson's Foundation

Summer is the time for long drives, late sunsets and the outdoors. However, direct and prolonged exposure to the summer sun can also result in sunburns and over time, skin cancer. Skin cancer is the most common cancer in the U.S. and it is even more of a threat for people with Parkinson’s disease (PD) because they have a higher risk of developing malignant melanoma. Skin cancer is preventable. Taking proper precautions and knowing what to look for can save your life.

Caregiver Corner: When Communicating With Your Loved One Is Threatened by Parkinson’s Disease

Thursday, December 10, 2015
Scott Silknitter

Communication is a vital way we connect, build and maintain relationships. It is scary when your loved one begins to have communication issues due to Parkinson’s disease (PD) that may threaten your bond. The good thing is it doesn’t have to be that way.

Reviewing some cognitive and communication changes that someone with PD may experience as the disease progresses, your loved one might:

Helping the Caregiver Stay Well

As a secondary caregiver your job is to support the primary caregiver.

Whether you are providing support from out of town or acting as a backup when your parent, sibling or friend needs time off, there are many ways you can provide love and support. Stepping into a secondary caregiver role can be a positive and rewarding experience, but it also comes with its own unique challenges. Here are some ways you can be helpful:

Gender Affects Caregiver Support

From the National Parkinson Foundation’s Parkinson Report Fall/Winter 2015

Women with Parkinson’s disease (PD) have a tougher time getting support for their PD issues than men, according to new research from the National Parkinson Foundation’s (NPF) Parkinson’s Outcomes Project.

In a study presented at the American Academy of Neurology Annual Meeting in April, NPF researchers reported that women with PD have fewer informal caregiving resources to rely on and are more likely to use formal, paid caregiving than men.


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