"You know I don’t eat in public,” Pat Merryman said to Wanda Patton, who are both heavily involved in the Columbus, OH, Parkinson’s disease (PD) community. They know people in every exercise class and attend every educational program. Pat keeps the Parkinson’s Foundation Ohio program manager’s business card with her to hand them out at every event she attends.
It might be surprising to learn that 20 to 30 percent of people with Parkinson’s disease (PD) will experience visual hallucinations. While typically not a symptom of PD itself, they can develop as a result to a change in PD medication or as a symptom of an unrelated infection or illness. It is important to know the signs of hallucinations and how to manage them.
Julie H. Carter, R.N., M.S., A.N.P. , Professor, Neurology, Oregon Health & Science University, and Associate Director, Director of Education and Outreach, Oregon Health & Science/Parkinson Center of Oregon
- Gain a better understanding of the skills necessary to cope as a care partner
Gwyn M. Vernon, Rhona Johnson, M.S.N., R.N., C.R.N.P. , National Director, The Edmond J. Safra Visiting Nurse Faculty Program
- Explore the needs of care partners in the early stages of Parkinson’s disease
- Discuss skills and resources helpful to care partners in early Parkinson’s disease
- Learn practical solutions
- Hear lessons learned based on experiences of other Parkinson’s disease care partners
Tom manages his Parkinson's disease (PD) symptoms by staying active, eating right and working with his health care team. He recently admitted to his doctor that when his wife isn't home he sometimes forgets to take his medication. His doctor recommended setting an alarm and using a pill organizer.
Eleanor was sitting at her friend Margaret’s house when she noticed a dog sniffing around the couch. She asked Margaret when she got the dog. Margaret said she didn’t have a dog. Eleanor realized she must be experiencing what her doctor warned her about when he increased her Parkinson’s disease (PD) medication dosage: hallucinations. She called her doctor that afternoon.
Before Miguel was diagnosed with Parkinson’s disease (PD) he often experienced A feeling of nervousness, worried thoughts and physical distress.. He retired early, but his anxiety would keep coming back, aggravating his tremor and making his thoughts race.
Learning to take the best care of yourself is caregiver job #1. When you’re a Parkinson’s disease (PD) caregiver, life seems like an endless list of things to do with never enough time to do them. Every day can feel like it goes by in 10 minutes — and lasts two weeks.
Learning how to take care of yourself early in your journey as a Parkinson’s disease (PD) caregiver is more important than you might think. If you’re feeling exhausted, overwhelmed, too stressed to think clearly, then you can’t be at your best, as a person or caregiver.