Changes in thinking and memory can be frustrating and frightening for both the person with Parkinson’s and the family. The videos on this page will help you understand, acknowledge and adapt to these changes so you can provide the best possible care for your loved one.
Part 1 supplies strategies to help you cope with your loved one’s confusion and memory problems. Part 2 addresses how to respond to behavior changes that can occur as a result of hallucinations, delusions and dementia. It is important to remember it is the disease talking, not your loved one. For more information, order your free copies of the Parkinson’s Foundation publications Cognition and Psychosis: A Mind Guide to Parkinson’s online or by calling our Helpline at 1-800-4PD-INFO (473-4636).
In 2016, the Parkinson’s Foundation hosted a Caregiver Summit that brought together caregivers from all over the U.S. and the world to share experiences and everyday strategies for coping with the complex problems that arise as a result of Parkinson’s. If you missed the event, don’t worry! All the general sessions were recorded and are available on our YouTube channel.
The information here offers suggestions and helpful hints, but is not designed to answer all questions. Each person with Parkinson’s is unique, so the suggestions may need to be modified for your particular situation. You are strongly recommended to seek and build a team of professionals in your local area to help you on your caregiving journey. If you have questions or need a referral to a local provider, call the Parkinson’s Foundation Helpline at 1-800-4PD-INFO (473-4636).
Watch the video below for a first-hand account of one woman’s experiences after her husband’s diagnosis with what health care professionals call “Parkinson’s disease psychosis.”