The cornerstone of the Parkinson's Advocates in Research (PAIR) program is a national network of more than 280 Research Advocates from around the United States who are actively changing the face of Parkinson’s disease (PD) investigation by prioritizing research, improving studies and influencing stakeholders.
“By helping decide what research should take priority, I can ensure studies reflect the needs of people with Parkinson's.”
-Ron Wincek, Parkinson’s Foundation Research Advocate, Patient Representative at the Foundation’s Community Choice Research Award Conference on Gastrointestinal Function, Lawrenceville, GA
“As an associate member of a national PD research consortium, I share the perspective of people with Parkinson's with research professionals. My goal is to provide suggestions on making study participation an easy and clear process, boost study recruitment and emphasize issues important to people with Parkinson's.”
-Becky Houde, Parkinson’s Foundation Research Advocate, Associate Member, Parkinson Study Group, Waltham, MA
“This is a hard disease because there is no cure. The only way we are going to speed the pace of drug development is by getting involved in research. Clinical trials sorely need people with PD and those without it. As Parkinson’s Foundation Research Advocates, my husband Al and I bring this critical message to support groups, health professionals and students in diverse communities."
-Jane Denmark, Parkinson’s Foundation Research Advocate, Bay Minette, AL