Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

Caregiver Resources

There are many types of organizations that offer diverse types of resources, services, information and support.

Contact the Parkinson’s Foundation Helpline

Your first call can always be to the Parkinson’s Foundation Helpline: 1-800-4PD-INFO (473-4636). Trained Parkinson’s disease information specialists provide up-to-date information about Parkinson’s, referrals to healthcare professionals, emotional support, community resources and a wide variety of free publications. The Helpline is open Monday through Friday, 9:00am to 6:00pm ET. You can also email us any time at helpline@parkinson.org.

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Aging Resources

These organizations offer information about services for older adults.

Caregiver Resources

These groups provide a range of options for caregiver education, support and networking.

Healthcare Professionals

There are many different types of healthcare professionals that can help you with different aspects of your caregiving journey.

*To find out if there are allied health professionals near you who have completed the Allied Team Training for Parkinson’s (ATTP) program, call our Helpline at 1-800-4PD-INFO (473-4636). ATTP is a Parkinson’s Foundation program that helps allied health professionals (physical, occupational and speech therapists, social workers, nurses, music therapists and others) develop a deeper understanding and appreciation of the skills needed to help people living with PD.

    U.S. Government Agencies

    You and your loved one might be eligible for various government programs. Call or visit their sites for information and to find out if you qualify.

    Medication Assistance

    There are general medication assistance programs as well as programs specifically for low-income individuals and families.

    Some pharmaceutical companies provide medication to people who cannot afford it. RxAssist offers a database of these patient assistance programs.

    People with neurogenic orthostatic hypotension (nOH) may be eligible for financial assistance related to their treatment through a program administered by the National Organization for Rare Disorders (NORD). For information, contact NORD at noh@rarediseases.org or 844-827-8743.

    The Patient Access Network Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications. PAN provides the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Since its founding in 2004, PAN has provided nearly 1 million underinsured patients with over $2.6 billion in financial assistance, through nearly 60 disease-specific programs. 

    Financial, Legal and Insurance Issues

    These groups can help you navigate the unique, complex issues facing seniors and people with disabilities and help you access crucial services (such as, affordable healthcare).

    Activities of Daily Living

    There are many companies that offer products to help with activities of daily living (ADLs), including eating, bathing, dressing, toileting, transferring/walking, and personal hygiene. These can range from small, adaptive products such as weighted utensils to larger mobility equipment like walkers and wheelchairs. These products may be covered by Medicare, with a doctor’s order and if  deemed medically necessary. In this case, they are referred to as durable medical equipment (DME).

    These  are just a few of the many companies that offer such equipment and other products to help with ADLs. Before buying, talk to a skilled therapist, such as an occupational or physical therapist, to find out what equipment is right for your loved one.

    End-of-Life Planning

    These groups offer resources, guidance and support to help you plan ahead and provide care.

     
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