Every other Tuesday, we bring you a new episode of Substantial Matters: Life and Science of Parkinson’s. Host Dan Keller, PhD, interviews Parkinson’s experts to highlight the treatments and techniques that can help you live a better life now, as well as the research that can bring a better tomorrow. Episodes focus on a range of topics relevant to your daily life, including new levodopa delivery methods, exercise, clinical trials, nutrition and more!
To get started, listen to the episodes in the following playlist, or learn more about each episode below.
If you would like to suggest a topic for the podcast, or if you have questions or feedback after listening, let us know at www.parkinson.org/feedback.
Dr. David K. Simon describes what the researchers did and what they found. More Info
Christine Hunter describes the value of volunteering for clinical trials and how participants view their experiences. More Info
Tanya Simuni, MD, explains the clinical trials process and describes some ongoing trials, including how the potential new drugs work and why it’s important for people with Parkinson’s to participate in research. More Info
Dr. Rajesh Pahwa of the University of Kansas describes how generics compare to brand name products and what to look for and look out for. More Info
Claudia Martinez discusses differences in the access to information across communities and her practices on providing the best possible care to the Hispanic community. More Info
Aaron Daley of the University of California, San Francisco, describes his center’s outreach efforts and what is needed to bring Parkinson’s resources to underserved and underrepresented communities. More Info
Elaine Book, MSW, RSW, discusses the particular challenges of YOPD like disclosure, planning for the future, and controlling the disease. More Info
Lissa Kapust, LICSW, discusses the complications of driving while having Parkinson's and a program aimed at assessment in a variety of areas. More Info
Mark Guttman, MD discusses the potential of using vaccines to clear abnormal forms of alpha-synuclein from the brain. More Info
David K. Simon, MD, PhD, explains how modern genetics can be a guide to developing new drugs for Parkinson's. More Info
More than 50 years after its discovery, levodopa is still the most effective treatment for Parkinson’s, but some people experience “off” periods or dyskinesias with oral medications. Dr. Mark Guttman describes new delivery methods that promise to help with some of these problems, especially for people who have had Parkinson’s for many years. More Info
Parkinson’s can be unpredictable – symptoms can come and go or get better and worse throughout the day. These so-called “on-off” fluctuations (also called motor fluctuations) and dyskinesias can be troubling, but movement disorder specialists can help with the choice of medication, dosages, and timing. Dr. Irene Malaty explains more about what causes these changes and how you can work with your doctor to manage them. More Info
Nutrition is increasingly part of the conversation when it comes to good Parkinson's care. Dr. Bas Bloem describes how diet can help improve some of the symptoms of Parkinson's and optimize the effects of medication, and he offers tips on getting adequate nutrition. More Info
Regular exercise is essential for people with Parkinson's. Dr. Bas Bloem describes what is known about exercise and PD and what is still in the research stages, and he offers some tips on overcoming barriers to getting enough exercise. More Info
Dr. Peter Schmidt of the Parkinson’s Foundation explains where people with Parkinson’s can go to receive the best interdisciplinary care and how the Foundation is improving standards of Parkinson’s care around the world. The Foundation's Centers of Excellence network and the Parkinson's Outcomes Project are key aspects of the discussion. More Info
In this debut episode of Substantial Matters: Life and Science of Parkinson's, Dr. Michael Okun talks about early warning signs of Parkinson's and offers practical advice on how to proceed after a diagnosis. More Info