Parkinson's Today Blog
Yesterday, Senator Cory Booker (D-NJ) joined nearly 300 people with Parkinson’s disease (PD), their families and other community members in Washington, D.C. to deliver a keynote address at the 2018 Parkinson’s Policy Forum. Parkinson’s is an important issue for the senator, whose late father lived with the disease for many years. During his speech, Sen. Booker discussed his family’s experience with PD, the need for robust Parkinson’ research funding and the importance of speaking up for what is right.
In this blog, Angie Hott discusses her work as a Parkinson’s advocate and her participation in the upcoming 2018 Parkinson’s Policy Forum, co-sponsored this year by the Parkinson’s Foundation and The Michael J. Fox Foundation. The event will take place March 19 to 21 in Washington, D.C. You can view a live stream of the Forum’s educational panels on March 19 and 20 by visiting the Parkinson's Foundation's Facebook page.
Most people associate Parkinson’s disease (PD) with tremors, a motor symptom. However, non-motor symptoms are common and can be more troublesome and disabling than motor symptoms. They can include cognitive changes, mood and sleep disorders, autonomic symptoms or weight loss.
March 12-18 is Brain Awareness Week. This year, the Parkinson’s Foundation, in collaboration with the Brain Donor Project, is working to shed light on the critical need for brain donation to advance Parkinson’s disease (PD) research.
The recent forecasting estimates for Parkinson’s disease (PD) are staggering. If accurate, the numbers suggest an urgent need to wake up and recognize that we are on the cusp of an emerging pandemic (Okun, 2013).
As people with Parkinson's and their loved ones know, you can, and often must, be your own best advocates. No one understands the ins and outs of Parkinson's better than those who are touched by the disease. On Wednesday, March 21, join members of our community for Parkinson’s Advocacy Day and tell your lawmakers what matters to you. By sharing your needs and priorities with elected officials on this day of action, you can play a critical role in shaping their decision-making.
Parkinson’s disease (PD) can change the way a person walks. Movement Symptoms like stiff muscles, rigidity and slow movement make it harder to take normal steps. In fact, short, shuffling steps are a common sign of PD, as is freezing, the feeling that your feet are stuck to the floor, for people with mid-stage to advanced PD.
Since 2011, the Parkinson’s Foundation has worked with the Parkinson’s community to address Medicare challenges related to services such as physical therapy, occupational therapy and speech-language therapy. In 2014, we advocated to remove the Improvement Standard, meaning that people with Parkinson’s could no longer be denied coverage for therapy solely for lack of improvement. Now, the Parkinson’s community can celebrate the next milestone in access to care for Medicare recipients.
Establishing your estate plan can be likened to committing to healthy eating. You know that it will benefit your health and quality of life as soon as you commit to it, but revving up to that first day and turning it into a lifestyle can feel like an impossible job.