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Information about legal rights when you have Parkinson's disease

So you or a loved one is diagnosed with Parkinson’s. The first thing, of course, is to do your best to get the right medical help.

  • While there is some basic information about the diagnosis and treatment that is important to know, what will become clear is that every case of Parkinson’s is different. Your situation is unique to you and should be addressed accordingly.
  • The diagnosis will lead to treatment recommendations tied to your  symptoms and needs, and will vary over time as the disease process unfolds and/or treatment options change.
  • Patients and caregivers alike do their best when gathering a baseline of medical knowledge and then focusing their attention on the needs at hand.

The model of approaching the medical considerations of a diagnosis also applies to the legal, financial, insurance and other practical aspects of managing life with a chronic, progressive condition.

  • Just as there is no one-size-fits-all medical solution, there is no single answer as to how to best approach these and other very real world concerns. Be very careful of advice that worked for someone else, or generic advice from the internet because it may not be appropriate for you. The key is for you to gain some general knowledge so you can be an informed consumer regardless of the approach you end up taking.
  • The complexity, cost and unpleasant nature of some of the decision making often causes people to stay in denial until it is simply too late to act or to act effectively.  If you wait until the pressures are too great, or your health has declined too much, you may make unwise, rash decisions, or simply miss opportunities to best structure approaches that will maximize your resources and attend to their needs.
  • Even worse, denial adds stress, which can exacerbate symptoms and complicate the disease management process.

The good news is that with basic information , you’ll be able to better define your situation, and provide dramatically improved security and peace of mind for yourself and your loved ones.

  • Becoming familiar with the basics, and your options, can help you feel more secure.
  • It can also help you to know when you need to reach out for expert help, and how to find the right resources to make your management of these matters as smooth as possible.