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National Parkinson Foundation's blog

Caregiver Corner: Thoughts on Parkinson’s by Maggy Hurchalla

Date: 
Monday, November 21, 2016
Author: 
Maggy Hurchalla

My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.

It takes a village.

Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.

Category: 
Caregiver Corner

Research Round Up: Parkinson's Foundation Study Sheds New Light on Parkinson’s and Dyskinesia, Antipsychotic Medication, Injury and Fall Rates

Date: 
Thursday, November 17, 2016
Author: 
Parkinson's Foundation

Who has the highest risk of injury among people with Parkinson’s disease (PD)? Is there a connection between medication combinations and falling less? Are prescription antipsychotics safe? Earlier this year, the Parkinson's Foundation presented four posters at the World Parkinson Congress (WPC) that answered these questions and more.   

Category: 
Research Round Up

Caregiver Corner: Top Parkinson's Foundation Resources for Caregivers

Date: 
Tuesday, November 8, 2016
Author: 
Vaughn Edelson

In all our programs, the Parkinson's Foundation aims to make life better for people affected by Parkinson’s disease (PD). Parkinson's not only affects the person who receives the diagnosis — it extends to that person’s family, friends and community. While we pride ourselves on the high quality information and resources we provide for people with Parkinson’s, we also recognize that caregivers need support.

Category: 
Caregiver Corner

What's Hot in PD?: Current Steering and New Deep Brain Stimulation Technologies: What’s Here and What’s Coming

Date: 
Friday, November 4, 2016
Author: 
Dr. Michael S. Okun

A surprising fact about deep brain stimulation (DBS) A surgical treatment for Parkinson's disease. A special wire (lead) is inserted into a specific area of the brain responsible for movement. The lead is connected to a pacemaker-like device implanted in the chest region.

Category: 
What's Hot in PD?

Caregiver Corner: Caregiver Self Quiz

Date: 
Thursday, October 20, 2016
Author: 
National Parkinson Foundation

As a caregiver, what areas of your life can you improve? Take this quiz to narrow it down. Monitor how your risk factors change over time by taking this quiz every few months. Share your results with family and friends so they can better understand the scope of caregiving.

Category: 
Caregiver Corner

What's Hot in PD? Lymphoctye Activation Gene 3 (LAG3) Antibodies as a Potential Future Treatment for Parkinson’s Disease

Date: 
Tuesday, October 4, 2016
Author: 
Dr. Michael S. Okun

Ted Dawson, PhD, and colleagues at the Johns Hopkins University, a National Parkinson Foundation Center of Excellence, have uncovered a potential new approach to treat Parkinson’s disease (PD). Researchers in Dawson’s laboratory focused on a protein called lymphocyte-activation gene 3, known as LAG3. This protein has been shown to be important in cell to cell transfers of α-synuclein (Lewy bodies), which is a protein found in the brain of a person with PD.

Category: 
What's Hot in PD?

What's Hot in PD? The Importance of Imaging Biomarkers to Diagnose and Track Parkinson’s Disease Progression

Date: 
Wednesday, August 31, 2016
Author: 
Dr. Michael S. Okun

A recent press release from the National Institutes of Neurological Disorders and Stroke detailed exciting ongoing work aimed to uncover MRI (magnetic resonance imaging) A medical imaging technique that uses magnetic forces to obtain detailed images of the body. MRI is non-invasive and does not use radiation. techniques capable of tracking Parkinson’s disease (PD) progression.

Category: 
What's Hot in PD?

What's Hot in PD? Hot on the Trail for a Urine Biomarker for Parkinson’s Disease

Date: 
Monday, August 1, 2016
Author: 
Dr. Michael S. Okun

Previous What’s Hot blogs have addressed the promise and challenge of developing biomarkers for Parkinson’s disease (PD). Several groups of researchers have been working on blood and imaging biomarkers to provide more information on Parkinson’s: diagnosis, prediction, monitoring and methods to measure progression. In this month’s What’s Hot blog, we examine a new approach that utilizes a urine sample to detect the presence of Parkinson’s disease activity.

Category: 
What's Hot in PD?

Caregiver Corner: Finding an Occupational Therapist for Your Loved One… and You!

Date: 
Wednesday, July 27, 2016
Author: 
Charissa Richter, MOTR, and Jana Underhill

It is difficult to provide broad, yet helpful occupational therapy tips for Parkinson’s disease (PD). As the saying goes, “When you have met one person with Parkinson’s disease, you have met one person with Parkinson’s disease.” The best tip I can give you as an occupational therapist is to find and regularly see an occupational therapist in your area who specializes in skilled therapy treatment for people with Parkinson’s.  

Category: 
Caregiver Corner

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