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Women & PD TALK

As part of the overall Women and PD Initiative, the Parkinson’s Foundation is leading the first national effort to address long-standing gender disparities in Parkinson’s research and care through the “Women and PD Teams to Advance Learning and Knowledge,” or “Women and PD TALK” project. This Parkinson’s Foundation project received $250,000 in award funding from the Patient-Centered Outcomes Research Institute, to develop new patient-centered recommendations to improve the health of women living with Parkinson’s disease.

Why Women and PD TALK?

Historically, Parkinson’s care has been based on research that has focused too narrowly on men or neglected to consider relevant gender differences. For example, treatment protocols have not taken into consideration the fact that women can react differently to medications or are less likely to see specialists.

How Does It Work?

Over its two-year term, the project challenges multidisciplinary leadership teams comprised of experts in the patient, research and health care communities to create recommendations to advance women’s health care.

The project will establish a national network of 10 sites that will engage communities in identifying women’s needs and prioritizing solutions.

The Parkinson’s Foundation and leadership teams will use these insights to develop action plans to change the landscape of Parkinson’s care.

Women and PD TALK National Team

Ann Boylan, M.A.
Advocate, Parkinson's Foundation

Leslie A. Chambers, M.S.P.H.
President & CEO
American Parkinson Disease Association

Megan Feeney, M.P.H.
Manager, Community Engagement
Parkinson's Foundation

Joan Hlas, M.S.W., L.I.S.W.
Struthers Parkinson's Center, Parkinson's Foundation Center of Excellence

Ruth Hagestuen, R.N., M.A.
Struthers Parkinson's Center, Parkinson's Foundation Center of Excellence

Sharon Krischer, M.A. (Co-Lead)
Advocate, Parkinson's Foundation

Rebecca Miller, Ph.D.
Advocate, Parkinson's Foundation

Clarissa Martinez-Rubio, Ph.D.
Director, Research and Centers Programs
Parkinson’s Foundation

Lisa M. Shulman, M.D.
Director, University of Maryland Parkinson's and Movement Disorders Center at the University of Maryland School of Medicine

Beth-Anne Sieber, Ph.D.
Federal Liaison, National Institute of Neurological Disorders and Stroke, National Institutes of Health

Karen Smith
Advocate, Parkinson's Foundation

Veronica Todaro, M.P.H. (Co-Lead)
Senior Vice President, Chief Operating Officer
Parkinson's Foundation

Allison Willis, M.D. (Co-Lead)
University of Pennsylvania, a Parkinson’s Foundation Center of Excellence

“The Parkinson’s Foundation is engaging key stakeholders in Women and PD TALK to ensure that our recommendations for women’s health are not only developed, but also implemented. First, we want to understand how to improve women’s lives, and then we want to make it happen," said Veronica Todaro, co-lead of Women and PD TALK, Parkinson’s Foundation Senior Vice President and Chief Operating Officer.

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