In this blog, Angie Hott discusses her work as a Parkinson’s advocate and her participation in the upcoming 2018 Parkinson’s Policy Forum, co-sponsored this year by the Parkinson’s Foundation and The Michael J. Fox Foundation. The event will take place March 19 to 21 in Washington, D.C. You can view a live stream of the Forum’s educational panels on March 19 and 20 by visiting the Parkinson's Foundation's Facebook page.
As people with Parkinson's and their loved ones know, you can, and often must, be your own best advocates. No one understands the ins and outs of Parkinson's better than those who are touched by the disease. On Wednesday, March 21, join members of our community for Parkinson’s Advocacy Day and tell your lawmakers what matters to you. By sharing your needs and priorities with elected officials on this day of action, you can play a critical role in shaping their decision-making.
Since 2011, the Parkinson’s Foundation has worked with the Parkinson’s community to address Medicare challenges related to services such as physical therapy, occupational therapy and speech-language therapy. In 2014, we advocated to remove the Improvement Standard, meaning that people with Parkinson’s could no longer be denied coverage for therapy solely for lack of improvement. Now, the Parkinson’s community can celebrate the next milestone in access to care for Medicare recipients.
Slow and steady weight loss is a known feature of Parkinson’s disease. Weight loss may initially be a positive and popular disease related feature. However, as patients dip below their ideal body weight, this may possibly impact quality of life and other outcomes (Akbar, 2015). In this month’s What’s Hot in PD?, we will discuss a recent article on weight loss in Parkinson’s disease.
Ronald Postuma, MD, and colleagues previously published an intriguing study showing that moderate amounts of coffee (caffeine) may improve the motor symptoms of Parkinson’s disease (PD). In this month’s issue of Neurology, Postuma and colleagues revise their previous comments on coffee drinking. Their revision is based on a larger and better designed clinical study.
People with Parkinson’s disease (PD) are in critical need of new, more effective therapies to treat the symptoms of the disease like dyskinesia and to stop its progression.
This week, members of our team are in Florida for an exciting first-time medical meeting, the Pan American Parkinson’s Disease and Movement Disorders Congress. It brings together a subset of a global group of professionals who research and treat movement disorders, including Parkinson’s.
The Parkinson's Foundation is proud of the work that our scientists have done to advance our understanding of Parkinson’s and to improve lives worldwide.
In December, two reports in the New York Times called attention to the potential link between paraquat, a strong pesticide, and Parkinson’s disease (PD). The pesticide, which has been previously linked to Parkinson’s, is banned in some countries including those where it is manufactured, but not in the US.
What should people with Parkinson’s know about this news?
Earlier this month, Congress approved, and President Obama signed, the Cures Act, formally known as the 21st Century Cures Act. Along with scores of other voluntary health and research organizations, the Parkinson's Foundation applauds this move as one that will confront diseases head-on and accelerate research seeking cures.