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Anti-TNF Therapy: Could Inflammatory Bowel Disease Therapies Pave a Path to a Treatment for Parkinson’s?

Date: 
Tuesday, May 8, 2018
Author: 
Dr. Michael S. Okun

A recent study by Inga and colleagues at the Mount Sinai Beth Israel Parkinson’s Foundation Center of Excellence in New York examined the incidence of Parkinson’s disease in inflammatory bowel disease patients.

From Washington, D.C. to Tennessee, Advocates Speak Up for the PD Community

Date: 
Monday, April 30, 2018

Judy and Phil Bellenfant were energized to be in Washington, D.C. in March for the 2018 Parkinson’s Policy Forum and to meet with Representative Chuck Fleischmann (R-TN) in his Capitol Hill office. 

And then, it snowed. It snowed so much that the federal government closed for the day and Judy and Phil couldn’t make it to the Hill. But there was no stopping the Bellenfants from making their voices heard.

Stopping the Spiral Toward Demoralization in Parkinson’s Disease

Date: 
Monday, April 9, 2018
Author: 
Dr. Michael S. Okun

People with chronic diseases such as Parkinson’s disease (PD) are at risk of spiraling into a demoralized state. Common symptoms include feeling helpless, hopeless, a sense of failure and incapacitated to respond to stressful situations. Doctors frequently fail to identify or address this issue. There is sparse research and a rare interest in screening for demoralization. In this month’s Whats Hot in PD?

Snow Doesn’t Stop Advocates from Making an Impact in Washington

Date: 
Monday, March 26, 2018
Author: 
Parkinson's Foundation

Last week, 300 Parkinson’s disease (PD) advocates from nearly all 50 states convened in Washington, D.C. for the 2018 Parkinson’s Policy Forum. This annual event brings people with PD and their loved ones to our nation’s capital for two days of education and training followed by a day of advocacy action and engagement. Despite a snowstorm that closed Congress’ doors and shut down the streets of Washington, advocates made sure the Parkinson’s community was heard on Capitol Hill.

Advocacy Is All in the Family for the Hotts

Date: 
Monday, March 12, 2018
Author: 
Angie Hott

In this blog, Angie Hott discusses her work as a Parkinson’s advocate and her participation in the upcoming 2018 Parkinson’s Policy Forum, co-sponsored this year by the Parkinson’s Foundation and The Michael J. Fox Foundation. The event will take place March 19 to 21 in Washington, D.C. You can view a live stream of the Forum’s educational panels on March 19 and 20 by visiting the Parkinson's Foundation's Facebook page.

Save the Date: Parkinson’s Advocacy Day

Date: 
Thursday, March 1, 2018

As people with Parkinson's and their loved ones know, you can, and often must, be your own best advocates. No one understands the ins and outs of Parkinson's better than those who are touched by the disease. On Wednesday, March 21, join members of our community for Parkinson’s Advocacy Day and tell your lawmakers what matters to you. By sharing your needs and priorities with elected officials on this day of action, you can play a critical role in shaping their decision-making.

Government Spending Bill Eliminates Medicare Therapy Cap, Increases Access to Care

Date: 
Thursday, February 15, 2018
Author: 
Parkinson's Foundation

Since 2011, the Parkinson’s Foundation has worked with the Parkinson’s community to address Medicare challenges related to services such as physical therapy, occupational therapy and speech-language therapy. In 2014, we advocated to remove the Improvement Standard, meaning that people with Parkinson’s could no longer be denied coverage for therapy solely for lack of improvement. Now, the Parkinson’s community can celebrate the next milestone in access to care for Medicare recipients.

What's Hot in PD? Should We Be More Aggressive in Preventing Weight Loss in Parkinson’s disease?

Date: 
Monday, December 4, 2017
Author: 
Dr. Michael S. Okun

Slow and steady weight loss is a known feature of Parkinson’s disease. Weight loss may initially be a positive and popular disease related feature. However, as patients dip below their ideal body weight, this may possibly impact quality of life and other outcomes (Akbar, 2015). In this month’s What’s Hot in PD?, we will discuss a recent article on weight loss in Parkinson’s disease.

What’s Hot: Coffee Might Not Help with Parkinson’s Disease Motor Symptoms

Date: 
Monday, October 2, 2017
Author: 
Dr. Michael S. Okun

Ronald Postuma, MD, and colleagues previously published an intriguing study showing that moderate amounts of coffee (caffeine) may improve the motor symptoms of Parkinson’s disease (PD). In this month’s issue of Neurology, Postuma and colleagues revise their previous comments on coffee drinking. Their revision is based on a larger and better designed clinical study.

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