Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

The Parkinson’s Foundation Joins Global Community at 4th World Parkinson Congress in Portland, OR

New York, NY & Miami, FL —  The Parkinson's Foundation, recently formed by the merger of the National Parkinson Foundation® (NPF®) and the Parkinson’s Disease Foundation® (PDF®), is pleased to join the global Parkinson’s community this week at the 4th World Parkinson Congress (WPC) in Portland, OR.  The Parkinson’s Foundation offers interactive programs to encourage the Congress’ 4,000 delegates and those participating online — researchers, health professionals and patient leaders — to join us in advancing the care and cure for Parkinson’s.  Join the Parkinson’s Foundation’s interactive programs by visiting www.parkinson.org/wpc and www.pdf.org/wpc, and using #Together4PD.

“The World Parkinson Congress has become a transformational event for the Parkinson’s community.  It is the single global event where Parkinson’s clinicians and scientists interface directly with the community,” said Michael S. Okun, M.D., National Medical Director of the Parkinson’s Foundation.  “At the Parkinson’s Foundation, we are particularly enthusiastic about the WPC because its philosophy aligns so close with our own.  We both know that intersection of science and care with patients is key to advancing care and research.”

The Parkinson’s Foundation estimates that as many as 10 million people worldwide live with Parkinson’s.  The legacy organizations of the Parkinson’s Foundation have been instrumental in helping to create and support the World Parkinson Congress, advocating for the creation of a space where the global Parkinson’s community can come together to improve understanding and promote advocacy worldwide and to potentially shape future research, treatment and care.

This week, the Parkinson’s Foundation brings a team of more than 100 staff, patient advocates and Foundation-supported researchers and health professionals to the Congress.

Here is how to participate in our interactive programs in-person or online:

  • Learn about Parkinson’s and Influence Research: visit the Parkinson’s Foundation booth (#406) at the Congress to browse educational materials and meet experts in the field.  Meet Dr. Okun at the booth and receive a signed copy of Parkinson’s Treatment: 10 Secrets to a Happier Life, or visit the “Book Nook Panel” on Thursday, September 22 at 5:30 PM PT to hear him discuss the book.  Vote in the 3rd Community Choice Research Awards, which seek feedback from the community to align scientific research with patient priorities and accelerate solutions for unmet needs in Parkinson’s.
  • See the Future of Parkinson’s Care: join a Foundation-sponsored pre-congress educational session, Changing how care is delivered: A success the Parkinson's community can take pride in, on Tuesday, September 20, from 2:00 PM to 3:15 PM PT, discussing our innovative evidence-based efforts to improve patient care and advocacy.
  • Learn about Parkinson’s Foundation Programmatic Advances: see results of Foundation programs seeking a cure and improved patient care and support, in which we have invested $365 million.  Visit our 10 scientific abstracts as follows:
    • Abstract #1335: Simpler prescribing patterns are associated with a lower rate of falls (Wednesday, September 21, 5:15 PM to 6:45 PM PT; Thursday, September 22, 11:30 AM to 1:30 PM PT, P31.17)
    • Abstract #1243: Engaging people with Parkinson’s in determining and defining research priorities: The PDF Community Choice Research Award (Thursday, September 22, 11:30 AM to 1:30 PM PT, P23.25)
    • Abstract #1077: Injury rates for people with Parkinson's are predicted by Parkinson’s severity independent of demographic data (Thursday, September 22 11:30 AM to 1:30 PM PT, P29.01)
    • Abstract #885: Outcomes of the PDF Community Choice Research Award: a workshop to address maintaining cognitive function in Parkinson’s (Thursday, September 22, 11:30 AM to 1:30 PM PT, P26.17)
    • Abstract #777: Prevalence of Parkinson’s disease in North America: a nationwide epidemiological study sharing available databases (Thursday September 22, 11:30 AM to 1:30 PM PT, P01.04)
    • Abstract #1152: Does gender influence the types of questions asked by people living with Parkinson’s? (Friday, September 23, 11:30 AM to 1:30 PM PT, P21.07)
    • Abstract #1231: Driving patient engagement in Parkinson’s clinical research: lessons learned in developing successful partnerships with study sponsors (Friday, September 23, 11:30 AM to 1:30 PM PT, P35.22)
    • Abstract #1259: Higher mortality with antipsychotic medication use in individuals with Parkinson’s (Friday, September 23, 5:15 PM to 6:45 PM PT, P34.07)
    • Abstract #1241: Parkinson’s Advocates in Research: A Parkinson’s Disease Foundation cutting edge program in patient engagement in research (Friday, September 23, 11:30 AM to 1:30 PM PT, P35.23)
    • Abstract #1236: PDF Women and PD Initiative: identifying and addressing unmet needs (Friday, September 23, 11:30 AM to 1:30 PM PT, P19.13)

“As a person living with Parkinson’s, it is easy to feel alone.  The World Parkinson Congress is an awe-inspiring opportunity to realize that in fact, there is a global network working toward the same goal: a world without Parkinson’s,” said Daniel Novak, Ph.D., of Fort Worth, TX, Chair, PDF People with Parkinson’s Advisory Council.  “I hope my fellow people with Parkinson’s will join the Parkinson’s Foundation — in Portland or online — in moving the cause forward.”

Follow the Parkinson’s Foundation at the 4th WPC by visiting www.parkinson.org.

Tuesday, September 20, 2016
Parkinson's Foundation Study Finds Gender Disparities in Caregiving, with Women at a Disadvantage
Monday, December 4, 2017

Largest Clinical Study Tracking Parkinson’s Patients Over Time Shows Women with Parkinson’s Have Fewer Caregiving Resources than Men with Parkinson’s

Parkinson’s Foundation Invests $60,000 to Develop Innovative Models of Patient Engagement
Wednesday, November 29, 2017

Six Awards Foster Patient-Driven Parkinson’s Research

Jesse Jackson Diagnosed with Parkinson's Disease
Friday, November 17, 2017

Rev. Jesse Jackson’s announcement today that he has been living with Parkinson’s Disease since 2015 further proves that receiving a diagnosis of Parkinson's is not a death sentence. There are many ways that people living with Parkinson's can control the symptoms of the disease with exercise and physical therapy to help maintain mobility and balance.

Update on Tozadenant Trial for Parkinson’s
Thursday, November 16, 2017

On 11/20/17, Acorda Therapeutics, Inc. announced that it is discontinuing the tozadenant clinical trial.  They concluded that they could not be confident that weekly white blood cell count screening would sufficiently ensure patient safety.

Parkinson’s Foundation Adds Marcia Mondavi Borger to Board of Directors
Tuesday, November 14, 2017

NEW YORK & MIAMI — The Parkinson’s Foundation today announced the election of Marcia Mondavi Borger to its Board of Directors.

Parkinson’s Foundation and Melvin Yahr International Parkinson’s Disease Foundation Announce Merger
Thursday, October 26, 2017

Parkinson’s Foundation Establishes ‘Dr. Melvin Yahr Research Award’ to Fund Neurology Fellows, Promote Leadership Diversity in Parkinson’s Research

Parkinson’s Foundation Welcomes Two New Board Members
Tuesday, October 24, 2017

Peter Goldman and Joshua Raskin Join Board of Directors

NEW YORK & MIAMI — The Parkinson’s Foundation today announced the election of Chicago entrepreneur Peter Goldman and New York financial analyst Joshua Raskin to its Board of Directors.

Parkinson's Foundation Unveils New Brand and Website
Thursday, October 19, 2017

NEW YORK and MIAMI /PRNewswire-USNewswire/ — The Parkinson's Foundation today announced the launch of its new brand and website following the recent merger of two legacy organizations – National Parkinson Foundation and Parkinson's Disease Foundation – as part of its mission to

FDA Approves Extended-Release Amantadine (GOCOVRI™) for Treatment of Dyskinesia
Friday, August 25, 2017

Statement from the Parkinson's Foundation Medical Director, Michael Okun, MD

Parkinson’s Foundation Announces $1.2 Million Investment to Advance Careers, Support Innovation of Early Career Parkinson’s Scientists
Tuesday, August 8, 2017

NEW YORK & MIAMI The Parkinson's Foundation is pleased to announce a $1.2 million investment in 27 career development and fellowship grants to support the work of promising early career scientists in the field of Parkinson's.

Pages

mail icon

Subscribe to get the latest news on treatments, research and other updates.