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Parkinson's Disease Foundation Invests in Next Generation of Patient Leaders

The Parkinson's Disease Foundation® (PDF®) is pleased to welcome 20 people with Parkinson's disease and care partners to its national research advocacy network. These individuals join more than 325 patient leaders who are helping PDF solve, treat and end Parkinson's disease.

The number of people living with Parkinson's is expected to double by 2030. PDF research investments have advanced our understanding of Parkinson's and improved millions of lives worldwide. But the Parkinson's community lacks the therapies they need most — those that would ease disabling symptoms, and slow or stop the disease. PDF is accelerating these goals by leveraging the strengths of the people with the most at stake — those living with the disease.

"More than a decade ago, PDF recognized that a critical piece of the research equation was missing: the patient," said Veronica Todaro, M.P.H., Vice President, National Programs, PDF. "We had a vision for the future in which people with Parkinson's would be at the forefront of research and today, PDF Research Advocates are making that vision a reality."

This week, the newest PDF Research Advocates are participating in the tenth training for Parkinson's Advocates in Research, a signature program of PDF. Those trained through the program have made strides in advancing patient-centered research and care by advising government on research priorities, collaborating with industry to create models of patient engagement and partnering with academic centers to reach underserved communities.

"As a person living with Parkinson's, I understand the urgency for better treatments and a cure," said Kirk Hall, M.B.A., of Highlands Ranch, CO, a PDF Research Advocate and faculty member for the training. "Having worked on the frontlines with researchers, I want my new colleagues to know this: together, we can create a new model of patient-driven research and care."

This week's training is part of PDF's strategy to end Parkinson's disease by building a team of leaders in science, health care and the patient community, and mobilizing them to work together toward a cure.

About Parkinson's Disease
Parkinson's disease is a progressive neurological disorder that affects nearly one million people in the US. Although promising research is being conducted, there is currently no cure for Parkinson's disease.

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Parkinson’s Foundation Earns 4-Star Rating from Charity Navigator
Monday, October 22, 2018

NEW YORK AND MIAMI—October 22, 2018—The Parkinson’s Foundation has achieved a 4-star rating from Charity Navigator, the nation's largest and most-utilized evaluator of charities.

The 4-star rating is the highest rating given only to nonprofit organizations that exceed industry standards and outperform peers, while demonstrating strong financial health and commitment to accountability and transparency.

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On September 20, 2018, the U.S.

Parkinson’s Foundation Extends Bilingual National Helpline Hours
Tuesday, September 18, 2018

NEW YORK & MIAMI — September 18, 2018 — The Parkinson’s Foundation announced today that its toll-free Helpline, 1-800-4PD-INFO, will extend its hours, answering calls in English and Spanish, to help make life better for people with Parkinson’s disease (PD) and their families.

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NEW YORK & MIAMI—September 11, 2018—The Parkinson’s Foundation today announced the location of its signature professional education program course, Allied Team Training for Parkinson’s, ATTP®, for health care professionals treating patients with Parkinson’s disease, in Atlanta.

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NEW YORK & MIAMI — August 14, 2018 — The Parkinson’s Foundation announced today an increased investment of $6.2 million across 53 research grants to support the work of promising scientists in the field of Parkinson's disease (PD) in 2018.

PD Gladiators Merges with the Parkinson’s Foundation Expanding Reach in Greater Atlanta Parkinson’s Community
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ATLANTA – August 1, 2018—PD Gladiators, Inc., an Atlanta-based nonprofit organization focused on combatting Parkinson’s disease (PD) with vigorous exercise, has merged with the Parkinson’s Foundation (PF), a non-profit organization whose mission is to make life better for people with PD worldwide through expert care and research.

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July 30, 2018—The Parkinson’s Foundation has collaborated with Medscape Education to launch an online learning program entitled “Parkinson’s Disease Psychosis: A Learning Destination for Care Partners and Patients,” available on Medscape’s patient portal, WebMD Education.

Parkinson’s Foundation Designates Three Centers of Excellence in Parkinson’s Care: Global Network Expands to 45 Parkinson’s Centers
Tuesday, July 24, 2018

MIAMI & NEW YORK CITY — July 24, 2018 — The Parkinson’s Foundation today announced the addition of three new Centers of Excellence to its global network: Cleveland Clinic; Medical University of South Carolina; and University of Iowa Hospitals and Clinics.

Parkinson’s Foundation Funds $450,000 for Local Parkinson’s Programs in Seven Cities Across the Country
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NEW YORK & MIAMI — July 23, 2018 — The Parkinson's Foundation today announced it will fund nearly $450,000 to local community grants in seven cities that hosted the Foundation's annual fundraiser, Moving Day, A Walk for Parkinson's, in 2017. These grants will further the health, wellness and education of people with Parkinson's disease (PD).

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