Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

The National Parkinson Foundation Announces Initiative to Further Define Stages of Parkinson’s Disease

Currently, there is no one definition of what it means to have advanced Parkinson’s disease
 

Initiative will support the creation of a tool to help physicians assess changes in the disease
 

MIAMI, FL — The National Parkinson Foundation (NPF), a division of the Parkinson’s Foundation, is proud to announce a collaboration with The Cure Parkinson’s Trust (CPT), AbbVie, and a steering committee comprised of physicians around the world to create a clinical questionnaire that can be used to define the transition between early/mid Parkinson’s disease (PD) and advanced PD.

Currently, there is no one definition of what it means to have “advanced” PD. For routine clinical practice, current guidelines do not recommend the use of any scales for staging the disease.  Scales used by expert neurologists to measure Parkinson’s symptoms exist, but there is no evidence-based guidance for how to translate scores to a treatment approach.

Hubert Fernandez, MD, of the Cleveland Clinic, said, “By characterizing the profile of patients that an expert neurologist would consider for options beyond first-line oral medications, we can help patients to get the benefits of expert insight even if they can’t make it to a movement disorders center.  We have assembled a strong team of physicians, industry experts and patient advocates sharing the common goal of improving care for people living with Parkinson’s.”

Development of this tool will attempt to standardize care assessment for all medical professionals involved in the identification and treatment of this progressive and disabling neurological disease.

“Research has shown a gulf between expert care and average care.  Together, NPF and AbbVie are working to help identify the criteria that expert neurologists use to evaluate a patient for a change in intervention,” said Peter N. Schmidt, PhD, NPF’s senior vice president, research and professional programs and chief mission officer. “Patients experiencing uncontrolled ‘off’ episodes or other PD symptoms have options.  The goal is to remain one step ahead of disease progression and to help people live well with Parkinson’s.”

The questionnaire will be developed using the following set of criteria:

  1. Describe the phases of PD that links the patient’s status to a stage-appropriate set of potential treatments.
  2. Be based on a simple screening approach that can be used to evaluate patients in any clinical setting.
  3. Be dynamic and updatable to reflect the latest PD guidelines and treatment options.  

“AbbVie is committed to improving the lives of patients living with Parkinson’s disease through the advancement of medical science and education,” said Michael Norton, vice president of U.S. Medical Affairs, AbbVie. “Our partnership in this initiative is a reflection of that commitment and will help bridge a currently unfilled gap in patient care.”

This tool for clinical evaluation will initially be piloted at NPF Centers of Excellence participating in the Parkinson’s Outcomes Project, the largest clinical study of PD in the world.  It will be available to all clinicians in the second half of 2017.

About Parkinson's Disease (PD)
Parkinson's disease is a progressive neurological disorder that affects one million people in the US and over 10 million worldwide.  Parkinson's is the second most common neurodegenerative disease after Alzheimer's and is the 14th leading cause of death in the US.  It is associated with a loss of motor control (e.g., shaking or tremor at rest and lack of facial expression) as well as non-motor symptoms (e.g., depression and anxiety).  Although promising research is being conducted, there is currently no cure for Parkinson's disease.

Monday, January 9, 2017
Parkinson's Foundation Study Finds Gender Disparities in Caregiving, with Women at a Disadvantage
Monday, December 4, 2017

Largest Clinical Study Tracking Parkinson’s Patients Over Time Shows Women with Parkinson’s Have Fewer Caregiving Resources than Men with Parkinson’s

Parkinson’s Foundation Invests $60,000 to Develop Innovative Models of Patient Engagement
Wednesday, November 29, 2017

Six Awards Foster Patient-Driven Parkinson’s Research

Jesse Jackson Diagnosed with Parkinson's Disease
Friday, November 17, 2017

Rev. Jesse Jackson’s announcement today that he has been living with Parkinson’s Disease since 2015 further proves that receiving a diagnosis of Parkinson's is not a death sentence. There are many ways that people living with Parkinson's can control the symptoms of the disease with exercise and physical therapy to help maintain mobility and balance.

Update on Tozadenant Trial for Parkinson’s
Thursday, November 16, 2017

On 11/20/17, Acorda Therapeutics, Inc. announced that it is discontinuing the tozadenant clinical trial.  They concluded that they could not be confident that weekly white blood cell count screening would sufficiently ensure patient safety.

Parkinson’s Foundation Adds Marcia Mondavi Borger to Board of Directors
Tuesday, November 14, 2017

NEW YORK & MIAMI — The Parkinson’s Foundation today announced the election of Marcia Mondavi Borger to its Board of Directors.

Parkinson’s Foundation and Melvin Yahr International Parkinson’s Disease Foundation Announce Merger
Thursday, October 26, 2017

Parkinson’s Foundation Establishes ‘Dr. Melvin Yahr Research Award’ to Fund Neurology Fellows, Promote Leadership Diversity in Parkinson’s Research

Parkinson’s Foundation Welcomes Two New Board Members
Tuesday, October 24, 2017

Peter Goldman and Joshua Raskin Join Board of Directors

NEW YORK & MIAMI — The Parkinson’s Foundation today announced the election of Chicago entrepreneur Peter Goldman and New York financial analyst Joshua Raskin to its Board of Directors.

Parkinson's Foundation Unveils New Brand and Website
Thursday, October 19, 2017

NEW YORK and MIAMI /PRNewswire-USNewswire/ — The Parkinson's Foundation today announced the launch of its new brand and website following the recent merger of two legacy organizations – National Parkinson Foundation and Parkinson's Disease Foundation – as part of its mission to

FDA Approves Extended-Release Amantadine (GOCOVRI™) for Treatment of Dyskinesia
Friday, August 25, 2017

Statement from the Parkinson's Foundation Medical Director, Michael Okun, MD

Parkinson’s Foundation Announces $1.2 Million Investment to Advance Careers, Support Innovation of Early Career Parkinson’s Scientists
Tuesday, August 8, 2017

NEW YORK & MIAMI The Parkinson's Foundation is pleased to announce a $1.2 million investment in 27 career development and fellowship grants to support the work of promising early career scientists in the field of Parkinson's.

Pages

mail icon

Subscribe to get the latest news on treatments, research and other updates.