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The Parkinson’s Foundation Celebrates the Life of Janet Reno

MIAMI and NEW YORK — Today we mourn the loss and celebrate the life of Janet Reno, a longtime friend of the Parkinson’s Foundation. Ms. Reno passed away at age 78 from complications of Parkinson’s disease. She was diagnosed in 1995, while still serving as the first female Attorney General of the United States. Despite her diagnosis, Ms. Reno continued in this role until 2000.

Within the Parkinson’s community, Ms. Reno advocated for greater research funding and encouraged others with the disease to engage in advocacy as well. As part of her efforts to raise awareness and funds for Parkinson’s research and outreach, Ms. Reno served as the Honorary Chair of Moving Day® Miami, the National Parkinson Foundation’s walk, from 2012-2015.

“Janet was a strong, brave woman, who approached each day of her life wanting to do the right thing,” said John W. Kozyak, Chairman of the Parkinson’s Foundation and friend of Ms. Reno. “She set an example for people living with Parkinson’s and she set an example for so many more to live life to the fullest, to be humble and to do the right thing. I will never forget how Janet comforted me when my parents were diagnosed with Parkinson’s. She is a legend to me and many.”

“Janet Reno lived two decades with Parkinson's and was an amazing example to everyone suffering with this disease, showing that it is possible to live a happy life. During her gubernatorial primary campaign, she drove all over the state in her little red truck and showed the world that Parkinson does not have to define you,” said Dr. Michael S. Okun, National Medical Director of the Parkinson’s Foundation and professor and chairman of neurology at the University of Florida. “We were honored to have her as the first patient at the University of Florida, a Parkinson’s Foundation Center of Excellence, where she was a champion for the interdisciplinary care concept.”

“Janet Reno’s willingness to publicly disclose her Parkinson’s showed courage and strength. It also paved the way for improved public awareness of this disease,” said Daniel Novak, Ph.D., Chair, PDF People with Parkinson’s Advisory Council. “As a person living with Parkinson’s, I’m grateful for her openness, which helped to advance understanding, treatments and care for our community.

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MIAMI & NEW YORK — June 26, 2018 — The Parkinson’s Foundation today announced the election of Howard D. Morgan as chairman of its board of directors. Mr. Morgan, who previously served as the Vice Chair of the nonprofit organization’s board, is a Partner and the Senior Managing Director of Argand Partners in New York.

Parkinson’s Foundation Announces Five New Members of its People with Parkinson’s Advisory Council
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NEW YORK & MIAMI — June 13, 2018 — The Parkinson’s Foundation today announced five new members of its People with Parkinson’s Advisory Council.

The Parkinson’s Foundation 2018 Gala in New York City Tuesday, May 8, 2018
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The Parkinson’s Foundation 2018 Gala was held at Cipriani 25 Broadway in New York City on Tuesday, May 8, 2018.

Parkinson’s Foundation Adds Alison Herman to its Board of Directors
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MIAMI – May 9, 2018 – The Parkinson’s Foundation today announced the election of Alison Herman to its board of directors. Herman is senior counsel at Southern Glazer’s Wine & Spirits, a company which has generously supported Parkinson’s Foundation fundraisers.

Statement on Nuplazid Drug
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On 4/9/18, CNN published an article on the FDA-approved drug, Nuplazid, used to treat hallucinations and psychosis in Parkinson’s disease. The article investigates FDA data showing the number of reported deaths with people taking Nuplazid. Nuplazid was approved by the FDA in 2016 and is manufactured by Acadia Pharmaceuticals.

Parkinson’s Foundation Adds John D. Thomopoulos to its Board of Directors
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MIAMI & NEW YORK – March 19, 2018 – The Parkinson’s Foundation today announced the election of John D. Thomopoulos to its board of directors. Thomopoulos is a partner at Ernst & Young.

In Memory of Edythe Kay Marsa
Monday, March 12, 2018

The Parkinson’s Foundation mourns the loss of emeritus board member, Edythe (Edy) Kay Marsa. From 1993 to 2014, she was a member of the Foundation’s board of directors and served on several committees. Edy is survived by her husband William Marsa, who founded the Herbert Kay Parkinson Chapter in honor of her first husband who passed away due to complications from Parkinson’s disease.

Parkinson’s Foundation Announces New Genetic Initiative Connecting Parkinson’s Genetic Data with Clinical Care
Tuesday, March 6, 2018

MIAMI & NEW YORK—March 6, 2018—The Parkinson’s Foundation today announced a new initiative offering genetic testing and counseling to Parkinson’s patients within its Center of Excellence network.

Delegates From The Parkinson’s Community Converge On Capitol Hill To Advocate For Critical Research Funding
Monday, March 5, 2018

—2018 Parkinson’s Policy Forum Co-Sponsored by the Parkinson’s Foundation and the Michael J. Fox Foundation for Parkinson’s Research—

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