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National Parkinson Foundation Hosts Caregiver Summit

MIAMI — The National Parkinson Foundation (NPF), a division of the Parkinson’s Foundation, will be hosting the first-ever Caregiver Summit, geared specifically toward caregivers of people living with Parkinson’s disease (PD). The daylong event on September 19, 2016 in Portland, Oregon, will bring together more than a hundred caregivers from all over the country and the world.

"The Caregiver Summit is a much-needed event for caregivers, who so often focus more on the person with PD than on themselves," said Vaughn Edelson, NPF Director of Education. "This event is one step of many NPF is taking to better understand and address the needs of today's PD caregivers, while informing new programs and approaches to support tomorrow's."

The agenda focuses on the dual role of all caregivers – caring for the person with PD and caring for yourself, the caregiver – and includes the following topics: maintaining dignity and identity; coping strategies for living in the moment; and tools for family caregivers. One of the sessions will feature a caregiver panel and there will also be opportunities for breakout sessions in the afternoon. Each attendee will receive a complimentary copy of the NPF Caring and Coping workbook, to help caregivers prepare for every step of the PD journey. 

“I could have never imagined the impact that the Caregiver Summit would have until I started reading caregiver stories from all over the globe,” said Julie Beck, Caregiver Summit Steering Committee member. “The network of caregivers sharing ideas online spoke to the urgent and pressing need for this type of event. We are all bonded together by being caregivers of someone with PD. This event will offer support not only the day of the event, but I believe it will have a lifelong impact on everyone who attends.”

ACADIA Pharmaceuticals Inc., is the proud sponsor of the NPF Caregiver Summit, which will offer encouragement, education and access to much-needed resources to those caring for people with PD. ACADIA is focused on the development and commercialization of innovative medicines that address unmet medical needs in central nervous system disorders.

The event will be held on Monday, September 19th – the day before the World Parkinson Congress begins – at the DoubleTree by Hilton in Portland, OR, from 9:00 am to 4:00 pm. There will be a Parkinson’s Activity Room open for people with PD to socialize while their care partners attend the Caregiver Summit. Learn more about the event or register for the free webcast at Please call the NPF Helpline with any questions about the Caregiver Summit, 1-800-4PD-INFO (473-4636).

Monday, September 12, 2016
Parkinson’s Foundation Earns 4-Star Rating from Charity Navigator
Monday, October 22, 2018

NEW YORK AND MIAMI—October 22, 2018—The Parkinson’s Foundation has achieved a 4-star rating from Charity Navigator, the nation's largest and most-utilized evaluator of charities.

The 4-star rating is the highest rating given only to nonprofit organizations that exceed industry standards and outperform peers, while demonstrating strong financial health and commitment to accountability and transparency.

Parkinson’s Foundation Awards New Nurse Faculty Grant to Four Nurses Specializing in Parkinson’s Care
Thursday, October 11, 2018

NEW YORK & MIAMI — October 11, 2018 — The Parkinson’s Foundation announced that it has awarded its first-ever Parkinson’s Foundation Nurse Faculty Award to four nurses, totaling $30,000. The nurses, all graduates of the Edmond J.

Update on NUPLAZID — FDA finds no new or unexpected safety risks
Friday, September 21, 2018

On September 20, 2018, the U.S.

Parkinson’s Foundation Extends Bilingual National Helpline Hours
Tuesday, September 18, 2018

NEW YORK & MIAMI — September 18, 2018 — The Parkinson’s Foundation announced today that its toll-free Helpline, 1-800-4PD-INFO, will extend its hours, answering calls in English and Spanish, to help make life better for people with Parkinson’s disease (PD) and their families.

Parkinson’s Foundation Hosts Allied Team Training for Parkinson’s in Atlanta
Tuesday, September 11, 2018

NEW YORK & MIAMI—September 11, 2018—The Parkinson’s Foundation today announced the location of its signature professional education program course, Allied Team Training for Parkinson’s, ATTP®, for health care professionals treating patients with Parkinson’s disease, in Atlanta.

Parkinson’s Foundation Increases Funding to $6.2 Million to Advance Parkinson’s Research
Tuesday, August 14, 2018

NEW YORK & MIAMI — August 14, 2018 — The Parkinson’s Foundation announced today an increased investment of $6.2 million across 53 research grants to support the work of promising scientists in the field of Parkinson's disease (PD) in 2018.

PD Gladiators Merges with the Parkinson’s Foundation Expanding Reach in Greater Atlanta Parkinson’s Community
Wednesday, August 1, 2018

ATLANTA – August 1, 2018—PD Gladiators, Inc., an Atlanta-based nonprofit organization focused on combatting Parkinson’s disease (PD) with vigorous exercise, has merged with the Parkinson’s Foundation (PF), a non-profit organization whose mission is to make life better for people with PD worldwide through expert care and research.

Parkinson’s Foundation Partners with Medscape Education to Deliver Patient Education
Monday, July 30, 2018

July 30, 2018—The Parkinson’s Foundation has collaborated with Medscape Education to launch an online learning program entitled “Parkinson’s Disease Psychosis: A Learning Destination for Care Partners and Patients,” available on Medscape’s patient portal, WebMD Education.

Parkinson’s Foundation Designates Three Centers of Excellence in Parkinson’s Care: Global Network Expands to 45 Parkinson’s Centers
Tuesday, July 24, 2018

MIAMI & NEW YORK CITY — July 24, 2018 — The Parkinson’s Foundation today announced the addition of three new Centers of Excellence to its global network: Cleveland Clinic; Medical University of South Carolina; and University of Iowa Hospitals and Clinics.

Parkinson’s Foundation Funds $450,000 for Local Parkinson’s Programs in Seven Cities Across the Country
Monday, July 23, 2018

NEW YORK & MIAMI — July 23, 2018 — The Parkinson's Foundation today announced it will fund nearly $450,000 to local community grants in seven cities that hosted the Foundation's annual fundraiser, Moving Day, A Walk for Parkinson's, in 2017. These grants will further the health, wellness and education of people with Parkinson's disease (PD).


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