Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

National Parkinson Foundation Hosts Caregiver Summit

MIAMI — The National Parkinson Foundation (NPF), a division of the Parkinson’s Foundation, will be hosting the first-ever Caregiver Summit, geared specifically toward caregivers of people living with Parkinson’s disease (PD). The daylong event on September 19, 2016 in Portland, Oregon, will bring together more than a hundred caregivers from all over the country and the world.

"The Caregiver Summit is a much-needed event for caregivers, who so often focus more on the person with PD than on themselves," said Vaughn Edelson, NPF Director of Education. "This event is one step of many NPF is taking to better understand and address the needs of today's PD caregivers, while informing new programs and approaches to support tomorrow's."

The agenda focuses on the dual role of all caregivers – caring for the person with PD and caring for yourself, the caregiver – and includes the following topics: maintaining dignity and identity; coping strategies for living in the moment; and tools for family caregivers. One of the sessions will feature a caregiver panel and there will also be opportunities for breakout sessions in the afternoon. Each attendee will receive a complimentary copy of the NPF Caring and Coping workbook, to help caregivers prepare for every step of the PD journey. 

“I could have never imagined the impact that the Caregiver Summit would have until I started reading caregiver stories from all over the globe,” said Julie Beck, Caregiver Summit Steering Committee member. “The network of caregivers sharing ideas online spoke to the urgent and pressing need for this type of event. We are all bonded together by being caregivers of someone with PD. This event will offer support not only the day of the event, but I believe it will have a lifelong impact on everyone who attends.”

ACADIA Pharmaceuticals Inc., is the proud sponsor of the NPF Caregiver Summit, which will offer encouragement, education and access to much-needed resources to those caring for people with PD. ACADIA is focused on the development and commercialization of innovative medicines that address unmet medical needs in central nervous system disorders.

The event will be held on Monday, September 19th – the day before the World Parkinson Congress begins – at the DoubleTree by Hilton in Portland, OR, from 9:00 am to 4:00 pm. There will be a Parkinson’s Activity Room open for people with PD to socialize while their care partners attend the Caregiver Summit. Learn more about the event or register for the free webcast at Please call the NPF Helpline with any questions about the Caregiver Summit, 1-800-4PD-INFO (473-4636).

Monday, September 12, 2016
In Memory of Robert Traurig
Wednesday, July 18, 2018

The Parkinson’s Foundation mourns the loss of emeritus board member Robert (Bob) Traurig. From 2004 to 2015, he was a member of the Foundation’s board of directors. Bob is survived by his wife Jacqueline, his daughters Madeline Sackel and Wendy Traurig.

New Study Shows 1.2 Million People in the United States Estimated to be Living with Parkinson’s Disease by 2030
Tuesday, July 10, 2018

Parkinson’s Foundation Reveals Most Comprehensive Estimate of
Parkinson’s Prevalence in North America since the 1970’s

Parkinson’s Foundation Elects Howard D. Morgan Chairman of the Board
Tuesday, June 26, 2018

MIAMI & NEW YORK — June 26, 2018 — The Parkinson’s Foundation today announced the election of Howard D. Morgan as chairman of its board of directors. Mr. Morgan, who previously served as the Vice Chair of the nonprofit organization’s board, is a Partner and the Senior Managing Director of Argand Partners in New York.

Parkinson’s Foundation Announces Five New Members of its People with Parkinson’s Advisory Council
Wednesday, June 13, 2018

NEW YORK & MIAMI — June 13, 2018 — The Parkinson’s Foundation today announced five new members of its People with Parkinson’s Advisory Council.

The Parkinson’s Foundation 2018 Gala in New York City Tuesday, May 8, 2018
Monday, May 14, 2018

The Parkinson’s Foundation 2018 Gala was held at Cipriani 25 Broadway in New York City on Tuesday, May 8, 2018.

Parkinson’s Foundation Adds Alison Herman to its Board of Directors
Tuesday, May 8, 2018

MIAMI – May 9, 2018 – The Parkinson’s Foundation today announced the election of Alison Herman to its board of directors. Herman is senior counsel at Southern Glazer’s Wine & Spirits, a company which has generously supported Parkinson’s Foundation fundraisers.

Statement on Nuplazid Drug
Tuesday, April 10, 2018

On 4/9/18, CNN published an article on the FDA-approved drug, Nuplazid, used to treat hallucinations and psychosis in Parkinson’s disease. The article investigates FDA data showing the number of reported deaths with people taking Nuplazid. Nuplazid was approved by the FDA in 2016 and is manufactured by Acadia Pharmaceuticals.

Parkinson’s Foundation Adds John D. Thomopoulos to its Board of Directors
Monday, March 19, 2018

MIAMI & NEW YORK – March 19, 2018 – The Parkinson’s Foundation today announced the election of John D. Thomopoulos to its board of directors. Thomopoulos is a partner at Ernst & Young.

In Memory of Edythe Kay Marsa
Monday, March 12, 2018

The Parkinson’s Foundation mourns the loss of emeritus board member, Edythe (Edy) Kay Marsa. From 1993 to 2014, she was a member of the Foundation’s board of directors and served on several committees. Edy is survived by her husband William Marsa, who founded the Herbert Kay Parkinson Chapter in honor of her first husband who passed away due to complications from Parkinson’s disease.

Parkinson’s Foundation Announces New Genetic Initiative Connecting Parkinson’s Genetic Data with Clinical Care
Tuesday, March 6, 2018

MIAMI & NEW YORK—March 6, 2018—The Parkinson’s Foundation today announced a new initiative offering genetic testing and counseling to Parkinson’s patients within its Center of Excellence network.


mail icon

Subscribe to get the latest news on treatments, research and other updates.