Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

Parkinson’s Foundation Announces Five New Members of its People with Parkinson’s Advisory Council

NEW YORK & MIAMI — June 13, 2018 — The Parkinson’s Foundation today announced five new members of its People with Parkinson’s Advisory Council. The council consists of people living with Parkinson’s disease and care partners who contribute their personal perspectives and experiences with the disease to ensure that all foundation programs and priorities are based on real-world needs and evidence.

“One of the fundamental ways the Parkinson’s Foundation serves its community is through the People with Parkinson’s Advisory Council,” said John Lehr, Parkinson’s Foundation president and chief executive officer. “We welcome our five new advisors who have the expertise and leadership within their communities to help us make life better for people with Parkinson’s.”

The advisory council’s newest members have a diverse background of professional skills and experiences:

  • Justin Fields, MBA, of Knoxville, TN
    In addition to working full-time, Fields, who is living with young-onset Parkinson’s, strives to expand local Parkinson’s support groups to foster awareness and community outreach.
     
  • Radhika D. Iyer, JD, MSW, of Durham, NC
    Iyer, a social worker, lawyer and health care technologist living with Parkinson’s, previously served as a board member on the Parkinson’s Foundation Western New York. Iyer helps people with Parkinson’s use technology, such as applications, to better manage their symptoms.
     
  • Glenn Kasman, MS, of Mercer Island, WA
    A retired healthcare executive and textbook co-author, Kasman has remained active within his local Parkinson’s support groups and as a peer mentor since his initial Parkinson’s diagnosis in 2015.
     
  • Gretchen Rosswurm, MS, of Irving, TX
    Vice president of philanthropy for Celanese Corporation, Rosswurm is living with Parkinson’s. She blogs and writes short fiction.
     
  • Karen St. Clair, of Santa Fe, NM
    Retired CEO, St. Clair and her husband, Rob St. Clair, who is living with Parkinson’s, started a support group. She is a board member on the New Mexico Parkinson’s Coalition.
     

In addition to the five new PPAC members, as of June 1, the council appointed Kelly Sweeney of Portland, Ore., as the chair, and Leslie Peters of Colorado Springs, Colo., as vice chair.

“The People with Parkinson's Advisory Council provides a vital perspective to the Parkinson's Foundation,” said Kelly Sweeney, PPAC chair. “As people living with Parkinson’s and care partners, our voice is represented, and our needs are understood through PPAC. Our input is aimed at improving quality of life and impacting science to slow or even cure this debilitating disease.”

In 2006, the Parkinson’s Foundation became the first organization to establish a patient leadership group instrumental to establishing programs and research initiatives. A total of 15 PPAC members guide Parkinson’s Foundation priorities, identify unmet needs, provide input on programs, and serve as liaisons to the community.

About the Parkinson’s Foundation 
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. For more information, visit www.parkinson.org or call (800) 4PD-INFO (473-4636).

About Parkinson’s Disease 
Affecting nearly one million Americans and 10 million worldwide, Parkinson’s disease is the second-most common neurodegenerative disease after Alzheimer’s and is the 14th-leading cause of death in the United States. It is associated with a progressive loss of motor control (e.g., shaking or tremor at rest and lack of facial expression), as well as non-motor symptoms (e.g., depression A mood disorder whose symptoms can include a persistent sad or empty mood, feelings of hopelessness or pessimism, irritability and loss of interest or pleasure in previously enjoyable activities. and anxiety). There is no cure for Parkinson’s and 60,000 new cases are diagnosed each year in the United States alone.

Wednesday, June 13, 2018
The National Parkinson Foundation Partners with Honor to Help the Home Care Company Deliver Personalized Care in the Home
Tuesday, June 21, 2016

The National Parkinson Foundation (NPF) and Honor home care announced today a collaborative partnership to bring personalized care in the home to people diagnosed with Parkinson’s.  Honor will license the NPF’s proprietary care guidance.

The National Parkinson Foundation Announces New Findings from Largest-Ever Parkinson’s Study of 8,000 Patients Worldwide
Monday, June 20, 2016

Latest Data Point To Improve Patient Care Through Precision Treatment

PDF Research Advocates Guide $16 Million in Parkinson’s Research Funding
Wednesday, June 15, 2016

Recently, two Parkinson’s Disease Foundation (PDF) volunteers helped guide $16 million in government funding for Parkinson’s disease (PD) research.

This spring, Sam Erwin, M.S., M.A., of West Des Moines, IA, and Paul Zimmet, D.D.S., of Reston, VA – both PDF Research Advocates, people living with PD and US Army Veterans – served as consumer reviewers of research funded by the US Department of Defense (DoD).

Parkinson's Disease Foundation Announces $4 Million in Research Investments to Solve, Treat and End Parkinson's Disease
Thursday, June 9, 2016

Research Funding for Early-Career Scientists Reflects Urgent Need for Better Therapies

Adaptive Athlete Announces 300 Skydives in 24 Hours
Wednesday, June 8, 2016

“300 Imperfect Jumps” Raises Funds for Parkinson’s Disease Research

NPF Celebrates the Life and the Legend of Muhammad Ali
Saturday, June 4, 2016

MIAMI — Today we mourn the loss and celebrate the life of Muhammad Ali, a longtime friend of the National Parkinson Foundation (NPF). Mr. Ali passed away at age 74 after being hospitalized for respiratory problems, a common complication in advanced Parkinson’s disease.

Parkinson’s Disease Foundation Marks Tenth Year of People with Parkinson’s Advisory Council
Tuesday, May 24, 2016

Patient Advisors Drive PDF Mission to Solve, Treat and End Parkinson’s

The Parkinson’s Disease Foundation® (PDF®) is pleased to mark the tenth year of its People with Parkinson’s Advisory Council and welcome five new members. Created in 2006, the council is made up of people living with Parkinson’s and care partners who drive PDF’s goals of ending the disease and improving the lives of those affected by it.

Fourth Annual Celebrate Spring Boston Raises $50,000 for Parkinson’s Disease Foundation
Tuesday, May 3, 2016

Boston Area Women Inspire Fellow Young Professionals to End Parkinson’s

FDA Approves Drug to Treat Parkinson’s Disease Psychosis
Friday, April 29, 2016

Today, the FDA approved Nuplazid (pimavanserin) as the first drug to treat hallucinations and delusions associated with Parkinson’s disease psychosis, which affects up to 40% of people with Parkinson’s.

FDA Panel Backs Approval of Pimavanserin
Tuesday, March 29, 2016

Big News for Advanced Parkinson’s

Pages

mail icon

Subscribe here to get the latest news on treatments, research and other updates.