Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

Parkinson’s Foundation Announces Five New Members of its People with Parkinson’s Advisory Council

NEW YORK & MIAMI — June 13, 2018 — The Parkinson’s Foundation today announced five new members of its People with Parkinson’s Advisory Council. The council consists of people living with Parkinson’s disease and care partners who contribute their personal perspectives and experiences with the disease to ensure that all foundation programs and priorities are based on real-world needs and evidence.

“One of the fundamental ways the Parkinson’s Foundation serves its community is through the People with Parkinson’s Advisory Council,” said John Lehr, Parkinson’s Foundation president and chief executive officer. “We welcome our five new advisors who have the expertise and leadership within their communities to help us make life better for people with Parkinson’s.”

The advisory council’s newest members have a diverse background of professional skills and experiences:

  • Justin Fields, MBA, of Knoxville, TN
    In addition to working full-time, Fields, who is living with young-onset Parkinson’s, strives to expand local Parkinson’s support groups to foster awareness and community outreach.
     
  • Radhika D. Iyer, JD, MSW, of Durham, NC
    Iyer, a social worker, lawyer and health care technologist living with Parkinson’s, previously served as a board member on the Parkinson’s Foundation Western New York. Iyer helps people with Parkinson’s use technology, such as applications, to better manage their symptoms.
     
  • Glenn Kasman, MS, of Mercer Island, WA
    A retired healthcare executive and textbook co-author, Kasman has remained active within his local Parkinson’s support groups and as a peer mentor since his initial Parkinson’s diagnosis in 2015.
     
  • Gretchen Rosswurm, MS, of Irving, TX
    Vice president of philanthropy for Celanese Corporation, Rosswurm is living with Parkinson’s. She blogs and writes short fiction.
     
  • Karen St. Clair, of Santa Fe, NM
    Retired CEO, St. Clair and her husband, Rob St. Clair, who is living with Parkinson’s, started a support group. She is a board member on the New Mexico Parkinson’s Coalition.
     

In addition to the five new PPAC members, as of June 1, the council appointed Kelly Sweeney of Portland, Ore., as the chair, and Leslie Peters of Colorado Springs, Colo., as vice chair.

“The People with Parkinson's Advisory Council provides a vital perspective to the Parkinson's Foundation,” said Kelly Sweeney, PPAC chair. “As people living with Parkinson’s and care partners, our voice is represented, and our needs are understood through PPAC. Our input is aimed at improving quality of life and impacting science to slow or even cure this debilitating disease.”

In 2006, the Parkinson’s Foundation became the first organization to establish a patient leadership group instrumental to establishing programs and research initiatives. A total of 15 PPAC members guide Parkinson’s Foundation priorities, identify unmet needs, provide input on programs, and serve as liaisons to the community.

About the Parkinson’s Foundation 
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. For more information, visit www.parkinson.org or call (800) 4PD-INFO (473-4636).

About Parkinson’s Disease 
Affecting nearly one million Americans and 10 million worldwide, Parkinson’s disease is the second-most common neurodegenerative disease after Alzheimer’s and is the 14th-leading cause of death in the United States. It is associated with a progressive loss of motor control (e.g., shaking or tremor at rest and lack of facial expression), as well as non-motor symptoms (e.g., depression A mood disorder whose symptoms can include a persistent sad or empty mood, feelings of hopelessness or pessimism, irritability and loss of interest or pleasure in previously enjoyable activities. and anxiety). There is no cure for Parkinson’s and 60,000 new cases are diagnosed each year in the United States alone.

Wednesday, June 13, 2018
Parkinson’s Foundation Earns 4-Star Rating from Charity Navigator
Monday, October 22, 2018

NEW YORK AND MIAMI—October 22, 2018—The Parkinson’s Foundation has achieved a 4-star rating from Charity Navigator, the nation's largest and most-utilized evaluator of charities.

The 4-star rating is the highest rating given only to nonprofit organizations that exceed industry standards and outperform peers, while demonstrating strong financial health and commitment to accountability and transparency.

Parkinson’s Foundation Awards New Nurse Faculty Grant to Four Nurses Specializing in Parkinson’s Care
Thursday, October 11, 2018

NEW YORK & MIAMI — October 11, 2018 — The Parkinson’s Foundation announced that it has awarded its first-ever Parkinson’s Foundation Nurse Faculty Award to four nurses, totaling $30,000. The nurses, all graduates of the Edmond J.

Update on NUPLAZID — FDA finds no new or unexpected safety risks
Friday, September 21, 2018

On September 20, 2018, the U.S.

Parkinson’s Foundation Extends Bilingual National Helpline Hours
Tuesday, September 18, 2018

NEW YORK & MIAMI — September 18, 2018 — The Parkinson’s Foundation announced today that its toll-free Helpline, 1-800-4PD-INFO, will extend its hours, answering calls in English and Spanish, to help make life better for people with Parkinson’s disease (PD) and their families.

Parkinson’s Foundation Hosts Allied Team Training for Parkinson’s in Atlanta
Tuesday, September 11, 2018

NEW YORK & MIAMI—September 11, 2018—The Parkinson’s Foundation today announced the location of its signature professional education program course, Allied Team Training for Parkinson’s, ATTP®, for health care professionals treating patients with Parkinson’s disease, in Atlanta.

Parkinson’s Foundation Increases Funding to $6.2 Million to Advance Parkinson’s Research
Tuesday, August 14, 2018

NEW YORK & MIAMI — August 14, 2018 — The Parkinson’s Foundation announced today an increased investment of $6.2 million across 53 research grants to support the work of promising scientists in the field of Parkinson's disease (PD) in 2018.

PD Gladiators Merges with the Parkinson’s Foundation Expanding Reach in Greater Atlanta Parkinson’s Community
Wednesday, August 1, 2018

ATLANTA – August 1, 2018—PD Gladiators, Inc., an Atlanta-based nonprofit organization focused on combatting Parkinson’s disease (PD) with vigorous exercise, has merged with the Parkinson’s Foundation (PF), a non-profit organization whose mission is to make life better for people with PD worldwide through expert care and research.

Parkinson’s Foundation Partners with Medscape Education to Deliver Patient Education
Monday, July 30, 2018

July 30, 2018—The Parkinson’s Foundation has collaborated with Medscape Education to launch an online learning program entitled “Parkinson’s Disease Psychosis: A Learning Destination for Care Partners and Patients,” available on Medscape’s patient portal, WebMD Education.

Parkinson’s Foundation Designates Three Centers of Excellence in Parkinson’s Care: Global Network Expands to 45 Parkinson’s Centers
Tuesday, July 24, 2018

MIAMI & NEW YORK CITY — July 24, 2018 — The Parkinson’s Foundation today announced the addition of three new Centers of Excellence to its global network: Cleveland Clinic; Medical University of South Carolina; and University of Iowa Hospitals and Clinics.

Parkinson’s Foundation Funds $450,000 for Local Parkinson’s Programs in Seven Cities Across the Country
Monday, July 23, 2018

NEW YORK & MIAMI — July 23, 2018 — The Parkinson's Foundation today announced it will fund nearly $450,000 to local community grants in seven cities that hosted the Foundation's annual fundraiser, Moving Day, A Walk for Parkinson's, in 2017. These grants will further the health, wellness and education of people with Parkinson's disease (PD).

Pages

mail icon

Subscribe here to get the latest news on treatments, research and other updates.