Survey Data

💡 Quick Summary

  • The Parkinson’s Foundation uses nationwide surveys to gather real-world input from people with Parkinson’s, care partners and healthcare professionals. 

  • These surveys help improve Parkinson’s research, care, programs and policy by highlighting the community’s lived experiences and needs. 

  • People with Parkinson’s help design each survey and findings cover key topics like COVID-19, cannabis use, telehealth and exercise. 

Survey data on a laptop

The Parkinson’s Foundation believes that to make life better for people living with Parkinson’s disease (PD), we must hear directly from those living with PD and those caring for them. Parkinson’s Foundation Surveys is an initiative to do just that.

Parkinson’s Foundation Surveys periodically asks people with PD, their care partners and medical professionals about specific aspects of living with and treating Parkinson’s. This initiative aims to advance Parkinson’s care through understanding the experiences of people living with this disease and widely sharing those experiences with the PD community.

Join our survey initiative

Make sure your voice is heard by taking Parkinson's Foundation Surveys.

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By better understanding how people living with PD experience the disease, the Foundation can be better informed in its programming, research, grant funding and policy initiatives.

People with Parkinson’s help design and review each survey. We collaborate with researchers from our Centers of Excellence and pharmaceutical partners to design surveys that meet research and community interests.

Recent Parkinson’s Foundation survey findings include:

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