NPF now offers a new website with information and guidance for clinicians providing evidence-based care to patients with PD, and a reference for medications, symptoms, and terms used in PD. You can access the site from your computer or from your mobile device, and there are iPhone and Android apps to help you do it. The toolkit isn’t designed to replace the great scientific and clinical references out there, but rather to give quick answers to common questions and to help you better use other materials. Also, most sections include educational materials for patients and family members, and this may be the fastest way to find those resources.
"Sexuality in Parkinson's Disease: Dynamic and Unpredictable"
Relationships are crucial in Parkinson's disease (PD). Spouses are typically the primary caregivers, and maintaining a positive relationship in the midst of all the stress associated with coping with the disease can be challenging. Gila Bronner, MPH, MSW, of the Sheba Medical Center in Israel, has established a world-wide reputation for understanding and assisting couples with managing this stress, in part through maintaining healthy sexual relationships. Bronner's approach includes but extends beyond the psychological barriers, as PD symptoms can affect emotional connections, sexual function, and sexual satisfaction. Inquiry about sexual functioning is often overlooked by primary care physicians due to time constraints, confusion about sexual conversation, and lack of proper training. Watch the "Sexuality in Parkinson's Disease: Dymanic and Unpredictable" webinar and learn to understand the nature of sexual dysfunction in people with PD and their partners as well as how to overcome common barriers to open sexual communication.
“Parkinson's Disease: Delivering a Diagnosis with a Dose of Hope”
The first steps you take after diagnosing a serious illness like Parkinson’s disease (PD) not only will establish how patients deal with this new reality, but will also affect your relationship with your patients as you guide them through the early stages of the disease. PD is typically diagnosed in largely healthy patients, and the diagnosis itself may initially have a greater impact than the disease. Because of its slow progression, many patients are first seen in primary care and it is up to the non-specialist to establish a diagnosis or refer on to a neurologist. Dr. Lawrence Elmer, M.D., Ph.D., with the Jacobson Center for Clinical and Translational Research, University of Toledo Medical Center is a clinical neurologist and PD researcher. His practice and research has provided him with extensive experience in treating PD patients in all stages. Dr. Elmer frequently works with televised media news programs to educate the public on symptoms and treatments for PD and has a particular interest in early Parkinson’s disease. Giving accurate information and anticipating patient’s questions at the outset can help set a positive tone for the ongoing care relationship. Watch the “Parkinson's Disease: Delivering a Diagnosis with a Dose of Hope” to hear about options on how to deliver a diagnosis of Parkinson’s and address initial patient concerns.
Parkinson's Across the Lifespan: A Roadmap for Nurses
An online course designed by Parkinson’s nurse specialists to help other nurses better understand how to deliver comprehensive care to people and families living with Parkinson’s disease (PD). The course is appropriate for nurses working in long-term care, acute care and general care settings; for recent nursing graduates; and for nursing students who have limited knowledge of the disease.
This online course is brought to you by the American Parkinson Disease Association (APDA), National Parkinson Foundation (NPF), and Parkinson’s Disease Foundation (PDF).
For more information and to register for the online course, please visit Parkinson's Disease Across the Lifespan: A Roadmap for Nurses.