A diagnosis of young-onset Parkinson’s disease brings with it special challenges. For example, deciding how and when to disclose the diagnosis at work and to children can be difficult, not to mention coping with a progressive condition and trying to plan for the future. Social worker Elaine Book discusses these challenges and more, as well as techniques for dealing with them.
- How to Talk With Your Family About Parkinson’s
- Parkinson’s and Your Children/Teenagers
- My Parent Has Parkinson’s. What Does It Mean?
For all of our Substantial Matters podcast episodes, visit parkinson.org/podcast.
About this episode
Key takeaways from Elaine Book:
- Asking for help is not a sign of weakness; it is a sign of strength.
- A positive attitude brings positive outcomes.
Elaine Book, MSW, RSW
Ms. Book has worked in the field of Social Work for over 25 years in a variety of community and hospital settings, with an interest in the geriatric population. She has worked with individuals, families, and as a leader of support groups. She is the Center Coordinator and Clinic Social Worker for the Parkinson’s Foundation Center of Excellence, the Pacific Parkinson’s Research Centre, at the University of British Columbia in Vancouver, Canada.
She has become a leader in the PD community, serving as a speaker at support groups, a presenter at neurology meetings, a faculty member of the Allied Team Training for Parkinson’s Program, mentor with the Parkinson’s Foundation, and a member of the Parkinson Canada Medical Advisory Council. Ms. Book also coordinates a blog designed for neurological social workers and has a special interest in raising awareness and developing resources for people with Parkinson’s and their children/teens.
Ms. Book earned her BSW from the University of Manitoba and her MSW from the University of British Columbia, with her thesis focusing on caregiver stress. She has continued to expand her training throughout her career, including cognitive behavioral therapy, advance care planning and social work instruction.