Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

Who Can Use the Kit

I Have Parkinson’s

If you are living with Parkinson’s disease, you know that advanced preparation is essential to making the most of each day.

Your new Aware in Care kit will help you prepare for your next hospital stay. The tools and information in your kit will also help protect you in case of an emergency situation.

The Parkinson’s Foundation recommends you take the following steps:

  • Connect with your local Parkinson’s Foundation chapter to get involved in our campaign to change hospital care for people with PD. Call our helpline at 1-800-4PD-INFO to learn more.
  • Ask for a kit from your chapter or order your Aware in Care kit today. If you live in Canada, call Parkinson Alberta at 1-877-243-9992 to order your kit.
  • Read the Hospital Action Plan booklet. Take the time to understand how to use each item in your kit and how to prepare for either a planned or emergency hospital visit.
  • Pack your Aware in Care kit. Add an emergency contact list, an extra supply of your Parkinson’s medications, a completed Medication Form and a copy of your healthcare proxy card.
  • Wear your new Parkinson’s Disease ID Bracelet and put the Medical Alert Card in your wallet. These two items work together to help alert healthcare workers about your Parkinson’s diagnosis in case of an emergency situation.
  • Talk to your caregiver, Parkinson’s doctor and primary care physician about Aware in Care. Let them know about how you are preparing for your next hospital visit and how they can help.
  • Tell others about Aware in Care. If you have friends or colleagues living with Parkinson’s, please share Aware in Care with them so that we can raise awareness of these serious issues.

I Am a Care Partner

As a care partner for a person living with Parkinson’s, you know firsthand the importance of advanced preparation in managing the disease.
Aware in Care is designed to help people with Parkinson’s and their caregivers plan for the next hospital visit, whether it is scheduled or an emergency.

The Parkinson’s Foundation recommends you take the following steps:

  • Connect with your local Parkinson’s Foundation chapter to get involved in our campaign to change hospital care for people with PD for the better! Call our helpline at 1-800-4PD-INFO to learn more.
  • Order a kit today. If you live in Canada, call Parkinson Alberta at 1-877-243-9992 to order your kit.
  • Review the Hospital Action Plan. Take the time to understand how to use each item in the kit and how to prepare for either a planned or emergency hospital visit.
  • Pack the Aware in Care Kit. Add an emergency contact list, an extra supply of Parkinson’s medications, a completed Medication Form and a copy of his or her healthcare proxy card.
  • Suggest that the person with Parkinson’s wear the Parkinson’s Disease ID Bracelet and put the Medical Alert Card in his/her wallet. These two items work together to help alert healthcare workers about the Parkinson’s diagnosis in case of an emergency situation.
  • Share Aware in Care information with your loved one’s doctor and primary care physician. Talk to them about the strategies you will use to try to get better care during the next hospital visit.
  • Never leave a person with Parkinson’s alone in the hospital.  Ask family and friends to help you the next time your loved one is hospitalized so there is always someone at his or her side during the entire hospital stay. Be sure each person who is helping out understands the needs of the patient and is able to communicate those needs to healthcare staff.

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email helpline@parkinson.org.

I Am a Support Group Leader

As a support group leader, you play a vital role in communicating critical information to people with Parkinson’s, their caregivers and families.

You can use Aware in Care materials to help you discuss the risks that people with Parkinson’s face in the hospital, as well as some of the strategies available to avoid these risks and get high quality care during the next hospital visit.

The Parkinson’s Foundation recommends you take the following steps:

  • Get a sample kit. Call the Parkinson’s Foundation Helpline at 1-800-4PD-INFO (473-4636) to order a few sample kits to show your members, as well as postcards to let members know how to order their own kits. We also have posters you can display to raise awareness of hospitalization issues. If you live in Canada, call Parkinson Alberta at 1-877-243-9992 or Parkinson Society British Columbia at 1-800-668-3330 to find out how your members can order their kits.
  • Participate in the Parkinson’s Foundation Aware in Care training. This 20-minute audio PowerPoint provides an overview of the program and the key messages to communicate. You will be given the link to this training when you call to order the kits.
  • Download the Aware in Care Discussion Guide for support group leaders. This document provides a suggested format for the support group meeting that will focus on Parkinson’s and hospitalization.

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email helpline@parkinson.org.

I Work in a Hospital

As a health care professional, you strive each day to provide quality care to every patient. Our Aware in Care kit can help you and your team provide quality care to people with Parkinson’s during hospitalization.

If a person with Parkinson’s arrives in your hospital with an Aware in Care kit, you should know that it was prepared and reviewed by academic experts in Parkinson’s care and the guidance in it is based on the best practices of the top academic medical centers: Parkinson’s Foundation Centers of Excellence.

If you want to get involved, here are some ways you can raise awareness about the needs of people with Parkinson’s in your hospital:

  • Make sure your patients get their anti-Parkinson’s medications on time, every time.
  • Order an Aware in Care kit. Review the kit to get familiar with the special circumstances that people with Parkinson’s face in the hospital, especially around medication timing and contraindicated medications.
  • Share Aware in Care with members of your team. Display an Aware in Care poster in your hospital and share vital information during a staff meeting.
  • Include Parkinson’s and hospitalization as a topic at your next educational event. Utilize our free resources: video, discussion guide and PowerPoint presentation.

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email helpline@parkinson.org.

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