Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

Helpline FAQs

The Parkinson’s Foundation Helpline welcomes calls from people with Parkinson’s disease, their families, friends and health care providers at 1-800-4PD-INFO (473-4636).

Our Parkinson’s Foundation Helplinespecialists answer calls about all aspects of Parkinson’s disease (PD) and we offer a wide variety of helpful publications for order.

When is the Helpline open?

Monday through Thursday from 9 a.m. to 6 p.m. and Friday from 9 a.m. to 5 p.m. Eastern Time. You can also email helpline@parkinson.org anytime.

Who will I be talking to if I call 1-800-4PD-INFO?

Compassionate, trained Parkinson’s disease information specialists from varied allied health professional backgrounds staff the Helpline.

What makes the Parkinson’s Foundation Helpline unique?

Highly trained PD experts who are bilingual in English and Spanish staff the Helpline.

What are my options when I dial 1-800-4PD-INFO?

  • Press 1 or stay on the line to speak to a PD information specialist in English.
  • Press 2 to speak with Donor Services.
  • Press 3 to speak with a PD information specialist in Spanish.

What general information is available?

Specialists give information on PD diagnosis, treatment, daily living, caregiver concerns, research, clinical trials, advanced Parkinson’s disease, fitness, speech and swallowing, coping, medications and many other topics.

What referrals do Parkinson’s disease specialists provide?

Information specialists can search the Parkinson’s Foundation database for Parkinson’s Foundation Centers of Excellence, health professionals with Parkinson’s disease expertise, Parkinson’s Foundation chapters, support groups and PD-tailored exercise and wellness classes in your area.

Does the Parkinson’s Foundation offer financial help?

While the foundation does not give financial aid, information specialists can give referrals to organizations that may be able to help with financial assistance for medication, transportation, basic needs and respite or nursing home care. Our specialists can also give information about various government social service programs that you may qualify for.

How long will I have to wait to speak with a Parkinson’s disease information specialist?

Most of the time, our information specialists are waiting for your calls and will pick up right away. Occasionally, all the lines will be busy and there may be a brief wait to speak with someone. If placed on hold, you will be prompted with information about how to leave a message so that we can call you back. Leave a message with your name, phone number, the best time to reach you and your time zone. You can also email us at helpline@parkinson.org. We will return your message as soon as possible.
You may also be able to find the answer to your question by:

  • Downloading or ordering our free publications at www.parkinson.org/books or searching our Parkinson’s library at www.parkinson.org/library.
  • Posting questions on our online forum where doctors, other health care professionals, caregivers or people with Parkinson’s can respond.
  • Finding local resources, such as support groups or health professionals, in your area at www.parkinson.org/search.

Disclaimer: While we are happy to discuss any issue with you, calling our helpline is not a substitute for seeing to a doctor. When making a medical decision, always consult a physician. We stand ready to discuss PD-related issues and places to get care or support, but we cannot diagnose or treat PD over the phone. When we offer names of people in your area, that does not specifically constitute an endorsement of them or the services they offer. The Parkinson’s Foundation does certify certain centers, has affiliated chapters and offers training to providers. If asked, a Helpline specialist can help you find one of these.

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