One of the ways NPF works to ensure that people with Parkinson’s disease receive the high quality care they deserve is by investing in research. In partnership with the world’s best minds in medicine and research at leading academic medical centers designated by NPF as Centers of Excellence, NPF works to advance the science of Parkinson’s disease. Many of the studies funded by NPF at these centers are yielding interesting results that are changing the way care is delivered to the Parkinson’s community. Click here to read more about the research funded by NPF.
The Parkinson’s Outcomes Project further strengthens our commitment to help people with Parkinson’s to get the best care possible. Through this project, we aim to identify which treatment and care strategies have the greatest impact on lessening the burden of the disease, and potentially changing its course. The Parkinson’s Outcomes Project is, at its heart, the largest study ever conducted in Parkinson’s disease. It is a comprehensive, international clinical study that is currently tracking the care provided and outcomes achieved of more than 6,000 people with Parkinson’s who receive their care at NPF Centers of Excellence. We call this study the NPF Quality Improvement Initiative (NPF-QII). This ongoing, clinical study provides a window into what works in Parkinson’s care in the real world, which turns out to be different from in the controlled environment of clinical trials. Physicians and researchers are using the data to evaluate the interrelationships among the full range of factors impacting the disease. With such a rich collection of information, researchers will be able to analyze data and draw correlations between patterns identified early on and health outcomes.
In addition, the Parkinson’s Outcomes Project will:
- Fund comparative research — to determine best treatments for patients and to understand the reasons responses to therapies differ from one individual to the next.
- Create transparency within the NPF Center of Excellence network — to determine which therapeutic strategies produce the best results and directly compare outcomes between centers.
- Involve patients in their care — to allow patients to compare their health and Parkinson’s care to that of similar patients and then use that information to make the best treatment choices.
- Inform education and outreach efforts — to help both families and health professionals succeed in meeting the challenges of Parkinson’s care no matter where they are located.
Learn more about NPF's Parkinson's Outcomes Project.
Read more about Parkinson’s Outcomes Project: Report to the Community.