Education For Patients
NPF maintains a wide range of free consumer educational resources to help people with Parkinson's and their caregivers actively manage the disease and become their own effective health advocates. Materials are distributed to thousands of patients and caregivers through our Centers of Excellence and Care Centers, as well as our local chapters. These resources are available in a variety of formats, from online versions of brochures and booklets to archived webcasts of live conference events and videos of Parkinson’s disease experts explaining topics important to know.
The NPF Helpline, 1-800-4PD-INFO (473-4636), provides information (in English and Spanish) to people with Parkinson's disease, their families, friends and healthcare providers. Services available include up-to-date information about the disease in general, emotional support, and referrals to health professionals and community resources. For more information, visit our Helpline page: www.parkinson.org/helpline.
Aware in Care
The NPF Aware in Care kit has tools and information to help a person with Parkinson's prepare for a hospital visit. The kit includes a Parkinson's disease ID bracelet, a Medical Alert Card and a Hospital Action Plan booklet that provides detailed steps for getting the best care possible during a hospital stay. Please visit our online store to get more information or to order a free kit.
NPF continues to offer print copies of our popular ‘Rainbow Books’, the widely respected ten-volume Parkinson's education series focused on issues critical to patients. Patients, families and professionals alike consider these books essential for education about PD, ranging from introductory information to more in-depth material that can be kept and reread many times over.
In addition to NPF's newsletter, the Parkinson Report, NPF offers an extensive seven-volume Spanish-language series and brochures in eight languages. Our newest publication is titled ’10 Early Warning Signs of Parkinson’s Disease’ and reviews ten signs that may mean someone has early stage PD and should talk to their doctor. All print booklets, brochures and newsletters are free of charge and may be requested by calling 1-800-4PD-INFO.
Learn more about NPF's publications.
- Download Parkinson's Central, a free, easy-to-use smartphone app that people with Parkinson's and their caregivers can use to access Parkinson's-related information wherever and whenever they need it. The app is available for iPhone and Android phones.
- If you have recently been diagnosed with Parkinson's, Sign up for First Connect My Page, NPF's free, web-based educational series that will give you the knowledge and tools you need to successfully navigate the unfamiliar and difficult territory of a Parkinson's diagnosis.
- People often have more questions than answers when it comes to caring for someone with advanced Parkinson's; and now, CareMAP is here to help. This online space helps caregivers get the right information at the right time.
- Visit our video library of over 60 videos on topics ranging from PD 101 to Exercise and Medications. To view videos of experts in care of people with Parkinson’s disease.
- Stay informed with forums. Our team of medical experts respond to questions about Parkinson’s disease from the public online in forums. Join the forum discussion group to hear from professionals and read responses from other patients.
- Get on the blog. NPF’s National Medical Director writes monthly columns on the latest developments in Parkinson’s disease research. Read current and archived blog entries here.
- Sign up to receive the free e-newsletter or read archived versions to stay up-to-date with research news, programs and personal stories.
NPF Sponsored Conferences and Workshops
Navigating a New World: Wellness Retreat for Recently Diagnosed Parkinson’s Patients & their Care Partners
Take charge of your health and learn from leading medical and holistic professionals how best to care for yourself and your family. Join us for this 4-day program designed for people in the early stages of Parkinson’s disease. You’ll participate in workshops covering the latest information on Parkinson’s research, medication and lifestyle changes that can impact the course of the disease, improve quality of life, and support personal relationships in a small group setting of 60 people.
Learn more about the Retreat.