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Caregiver Summit

Event Information

The Parkinson's Foundation Caregiver Summit took place Monday, September 19, 2016, in Portland, Oregon. The daylong event brought together caregivers from all over the U.S. and the world to share experiences and everyday strategies for coping with the complex problems that arise as a result of PD.

There are two distinct but complementary aspects to caregiving – caring for the person with Parkinson's and caring for yourself. The Caregiver Summit addressed this dual role, focusing particular attention on strategies that can be used to cope in the moment.

Made possible in part through generous support from ACADIA Pharmaceuticals.


View the Summit program:

Session Recordings

If you weren't able to join us on 9/19/16, don't worry! All general sessions of the Caregiver Summit were recorded and are available on the Parkinson's Foundation YouTube channel.

Speaker Presentations

Download speaker slides below.

Welcome: Building Blocks for Creative Caregiving - Susan Imke, FNP, GNP-C, Kane Hall Barry Neurology (Bedford, TX)

Maintaining Dignity and Identity - Susan Hedlund, MSW, LCSW, Oregon Health & Science University (Portland, OR)

Tools for Family Caregivers: CareMAP and Caring and Coping - Vaughn Edelson, National Parkinson Foundation (Miami, FL)

The PD You Can't See: Dealing with Non-Motor Symptoms - Kaitlyn Roland, PhD, University of Victoria (British Columbia, Canada)

Keynote: Strategic Steps for Moving Forward - Susan Imke, FNP, GNP-C, Kane Hall Barry Neurology (Bedford, TX)

Caregiver Resources

All Summit participants received a copy of Caring and Coping, the Parkinson's Foundation's workbook for caregivers. Order your free copy here. Also check our "CareMAP" playlists at Twenty-one how-to videos on assisting with activities of daily living and 19 caregiver stories offer practical tips and personal reflections related to caring for someone with Parkinson's.

If you have any questions about the event or caregiver resources, call the Parkinson's Foundation Helpline at 1-800-4PD-INFO (473-4636).

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