About Us

Parkinson’s disease is the second most common neurodegenerative disease after Alzheimer’s, affecting about one million people in the United States and an estimated four million worldwide. The Center for Disease Control rated complications from Parkinson’s disease as the 14th leading cause of death in the United States. The prevalence of the disease is expected to increase substantially in the next 20 years due to the aging of the population in the U.S., Europe and globally, as well as an increase in the age-related incidence of the disease. The economic burden of Parkinson’s disease is estimated to be over $14 billion annually in the U.S. — $8.1 billion in medical expenses and $6.3 billion in indirect costs attributed to Parkinson's disease. Learn more about Parkinson's disease.

For over half a century, the National Parkinson Foundation (NPF) has focused on meeting the needs in the care and treatment of people with Parkinson’s disease (PD). NPF has funded more than $182 million in care, research and support services.

Unique among other Parkinson’s organizations, NPF has a singular focus — our mission is to improve the quality of care through research, education and outreach.

Today, NPF has created a global network serving the needs of the Parkinson’s community including:

NPF drives breakthrough research by bringing together the thought leaders at NPF Centers of Excellence--leading medical centers around the globe that deliver care to more than 50,000 Parkinson’s patients. Through the centers network, NPF creates a community of health care professionals dedicated to improving clinical care in Parkinson’s disease.  Learn more about NPF’s grant accomplishments.

At the forefront of NPF’s efforts is the Parkinson's Outcomes Project (POP). Better research means better treatment. Better treatment means better lives. That’s why NPF’s POP is so important. POP is the first large-scale comprehensive study to track how Parkinson’s disease progresses and how various treatments affect outcomes.  The long-term goal of POP is to create feed-forward clinical decision making that will help people with Parkinson’s manage their symptoms and keep life at a high-functioning status. Our ultimate aim is to create and share models of excellent care, so that every Parkinson’s patient receives the most effective treatment options available, whether they are seen by a specialist at an NPF Center of Excellence, a general neurologist or their primary care physician. POP will transform the way Parkinson’s care is delivered.

NPF believes that every person diagnosed with Parkinson’s deserves the best care and treatment no matter who they are or where they live. We convene experts, assemble the scholarly evidence for best practices, and disseminate findings within the field and beyond. We believe that advances in treatment are adopted widely only by an increase in knowledge and awareness by scholars, physicians and patients. For this reason, patient and family empowerment materials are essential to our strategy.

In each of our research, education and outreach programs, NPF is dedicated to promoting our passionate belief that the best care is a comprehensive approach that addresses the whole person and the full range of symptoms of the disease, while continuously searching for the next insight that will change the course of this devastating disease. Learn more about how you can help us in these efforts.

For more information about NPF or Parkinson's disease, please call us at 1-800-4PD-INFO (1-800-473-4636) or e-mail helpline@parkinson.org.


Meets all 20 BBB Charity Standards

 

Print