Care Partner Resources

Husband and wife sitting on the bed looking at a tablet

There are many types of organizations that offer diverse types of resources, services, information and support.

Contact the Parkinson’s Foundation Helpline

Your first call can always be to the Parkinson’s Foundation Helpline at 1-800-4PD-INFO (1-800-473-4636). Helpline specialists provide up-to-date information about Parkinson’s, referrals to healthcare professionals, community resources.

Call us Monday through Friday, 9 a.m. to 7 p.m. ET. or email us any time at Helpline@Parkinson.org.

These organizations offer information about services for older adults.
- US Aging: Eldercare Locator 202-872-0888
- Alliance for Aging: 800-96-ELDER (800-963-5337)
- Health in Aging: 800-563-4916
These groups provide a range of options for caregiver education, support and networking.
- AARP Caregiving: 877-333-5885
- Family Caregiver Alliance: 800-445-8106
- Well Spouse Association: 800-838-0879
- ARCH National Respite Network and Resource Center: 919-490-5577
- Caregiver Action Network: 202-454-3970; Check out the Family Caregiver Toolbox
- Connecting with Caregivers, from the American Psychological Association
- Family Caregiver Council
- Lotsa Helping Hands
- National Adult Day Services Association: 877-745-1440
- National Alliance for Caregiving: 301-718-8444
- National Caregivers Library
- Next Step in Care
Different types of healthcare professionals can help along caregiving journey:
- Aging Life Care Association: 520-881-8008
- Find a Mental Health Therapist
- Visiting Nurse Associations of America
- Find a Physical Therapist: Search for a therapist with a specialty in geriatric or neurological rehabilitation
- Find a Speech-Language Pathologist
- Find an LSVT-Certified Clinician (Search for LSVT LOUD speech-language clinicians and LSVT BIG physical and occupational therapists)
- Find a P WR! Moves Certified Therapist or Instructor
- Find a Parkinson's Voice Project SPEAK OUT Provider
Join A Team Training

The Parkinson’s Foundation offers PD care training for healthcare professionals. To find a healthcare professional who has completed our Team Training, call our Helpline at 1-800-4PD-INFO (1-800-473-4636).

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You and your loved one might be eligible for various government programs. Call or visit their sites for information and to find out if you qualify.
- Administration for Community Living: Programs, Networks and Focus Areas
- Centers for Medicare and Medicaid Services: 800-MEDICARE (800-633-4227)
- Job Accommodation Network
- Social Security Administration: 800-772-1213
- US Aging: Eldercare Locator
- U.S. Department of Labor: Office of Disability Employment Policy 1-866-487-2365
- Veterans Administration (VA): 800-827-1000.
  - Parkinson's Disease Research Education and Clinical Centers (PADRECC)
  - VA Caregivers Support Line 1-855-260-3274
There are general medication assistance programs as well as programs specifically for low-income individuals and families.
- The Assistance Fund 855-845-3663
- Medicare Savings Programs: 800-MEDICARE (800-633-4227)
  - Medicare Part D Extra Help Program
- NeedyMeds: 800-503-6897
- RxAssist: Some pharmaceutical companies provide medication to people who cannot afford it. This database lists these patient assistance programs.
- Patient Access Network Foundation: an organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for prescribed medications.
People with neurogenic orthostatic hypotension (nOH) may be eligible for financial assistance related to their treatment through a program administered by the National Organization for Rare Disorders (NORD). For information, contact NORD at Noh@RareDiseases.org or 844-827-8743.
These groups can help you navigate the unique, complex issues facing seniors and people with disabilities and help you access crucial services (such as, affordable healthcare).
- Medicare Rights Center: 800-333-4114
- National Academy of Elder Law Attorneys
- Patient Advocate Foundation: 800-532-5274
- State Health Insurance Assistance Program
There are many companies that offer products to help with activities of daily living. Learn more about these devices on our individual pages:
Assistive devices and products may be covered by Medicare, with a doctor’s order and if deemed medically necessary. In this case, they are referred to as durable medical equipment (DME).
These groups offer resources, guidance and support to help you plan ahead and provide care.
- Aging with Dignity: 800-537-2118
- National Hospice and Palliative Care Organization Caring: 800-658-8898
- POLST: Portable Medical Orders 202-780-8352
- The Conversation Project

MY PD STORY: Nan Nop Corrigan

"I feel blessed because of my work. Caring for and loving people with Parkinson’s disease (PD), or any disease, is very important to my patients, their families and me."

READ Nan's STORY

Parkinson's Foundation Helpline

Contact our Helpline at 1-800-4PD-INFO (1-800-473-4636) or Helpline@Parkinson.org for answers to your Parkinson’s questions. Helpline specialists can assist you in English or Spanish, Monday through Friday, 9 a.m. to 7 p.m. ET.

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